All of Us Research Program

Thank you to everyone who participated in our All of Us Includes Disability Twitter Chat. More information about the Chat will be available coming soon.

To access our most recent webinar on the All of Us Research Program, supported by the UM Rural Institute for Inclusive Communities, click here

•  Topics included in the webinar involve: Precision Medicine;
Precision Health; Technologies promoting health

AAHD has continued its partnership with HCM Strategists (HCM) and National Institutes of Health (NIH) to raise awareness and increase outreach for the All of Us Research Program. In May, NIH launched national enrollment for the All of Us Research Program – a momentous effort to advance individualized prevention, treatment and care for people of all backgrounds, including people with disabilities. The All of Us Research Program is a historic effort to gather health data from one (1) million or more people living in the United States to accelerate research and improve health.

Precision medicine is an emerging approach to disease treatment and prevention that considers differences in people’s lifestyles, environments and biological makeup, including genes.  By partnering with 1 million diverse people who share information about themselves over many years, the All of Us Research Program will enable research to more precisely prevent and treat a variety of health conditions. The All of Us Research Program seeks to transform the relationship between researchers and participants, bringing them together as partners to inform the program’s directions, goals and responsible return of research information.  Participants will be able to access their own health information, summary data about the entire participant community and information about studies and findings that result from All of Us.

The American Association on Health and Disability (AAHD) is proud to be part of this initiative that will include people with disabilities and work to improve the health status of people with disabilities across the nation. AAHD will continue conducting national outreach on the program using social media, webinars, newsletters and conference exhibits to assist All of Us in developing a disability-focused rationale for why people with disabilities should participate in the program. AAHD will also continue working with 4 sites across the country, assisting them in educating potential participants from their constituencies. The 4 sites are as follows:

  • Lakeshore Foundation – Birmingham, AL
  • University of Montana Rural Institute – Missoula, MT
  • Center for Independence of the Disabled, NY – New York, NY
  • University of New Mexico Center for Development and Disability – Albuquerque, NM

To learn more about the program and how to join, please visit https://www.joinAllofUs.org. To learn more about AAHD’s outreach and communication efforts, contact Roberta Carlin, at rcarlin@aahd.us or Karl Cooper, at kcooper@aahd.us or call AAHD at (301) 545-6140 or check out these resources:

Webinars