Policy Updates

The American Association on Health and Disability plays an important role in disability policy and advocacy at the national level. AAHD strives to ensure that the needs of people with disabilities receive attention and respect on the national legislative agenda. AAHD is involved in numerous disability coalitions and networks that address the needs of people with disabilities. Please visit the Policy site to learn more about our activities in this area. AAHD staff maintain an active role in Washington, DC to ensure that health promotion and wellness for people with disabilities is on the disability and healthcare agenda. AAHD staff have positions on the APHA, Disability Section, Executive Council; the CDC, NCBDDD, Executive Committee; Consortium for Citizens with Disabilities-CCD and serve on the National Health Council; Coalition for Health Funding; Disability Rehabilitation and Research Coaltion; Coalition for Whole Health, Patient Care Primary Care Collaborative; and other coalitions advocating for policy that works towards reducing health disparities between people with disabilities and the general population and reducing the incidence of secondary conditions in children and adults with disabilities.

Medicare Prescription Medications Relief Legislation (S. 2911) – Seniors and Persons with Disabilities

AAHD has joined the Medicare Access for Patients Rx (MAPRx) Coalition supporting S. 2911. The January 13 letter to US Senators is here: PDF.

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Block Granting Medicaid – Concerns with Tennessee Waiver Proposal (3)

Available here is the December 27 Consortium for Citizens with Disabilities (CCD) Task Force on Health co-chairs letter to HHS objecting to the proposed TN plan to block grant Medicaid: PDF.

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Block Granting Medicaid – Concerns with Tennessee Waiver Proposal (2)

AAHD has joined 34 national organizational members of the Mental Health Liaison Group (MHLG) expressing concern about TN’s plans to block grant Medicaid. The December 27 letter to TN and CMS is here: PDF.

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Block Granting Medicaid – Concerns with Tennessee Waiver Proposal

AAHD has joined the Partnership To Improve Patient Care (PIPC) expressing concerns about TN’s plans to block grant Medicaid. The December 24 letter to TN and CMS is here: PDF.

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Medicare Payment for Wheel Chair Power Adjusted Seats and Standing Devices

The ITEM (Independence Through Enhancement of Medicare and Medicaid) Coalition (AAHD is a member) has again written CMS on Medicare payment of wheel chair power devices. Available here is the ITEM December 20 communication to CMS and an ITEM Coalition developed list of studies.

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PCORI (Patient-Centered Outcomes Research Institute) Reauthorized to 2029

Available here are the December 20 & 21 statements on the Congressional 10 year PCORI reauthorization: statements by PCORI and the Friends of PCORI (AAHD is a member of the Friends).

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Medicare Disability Benefit Expansion – Power Wheelchairs, Complex Rehab Technology, Pressure Wound Tx

AAHD has joined the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition asking for Medicare benefits expansions. The December 16 letter to the House of Representatives and 3 fact sheets on power wheelchairs, complex rehab tech, and pressure wound treatment are here:

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Medicaid Money Follows the Person Reauthorization

AAHD has joined the Consortium for Citizens with Disabilities (CCD) and Disability and Aging Collaborative (DAC) requesting Congress to insert the reauthorization of the Medicaid Money Follows the Person (MFP) and Medicaid HCBS Spousal Impoverishment Protections to the Prescription Drug Pricing legislation. The December 15 letter is here: PDF.

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Medicare Beneficiary Protections Legislation

AAHD has joined a coalition, led by the National Council on Aging, requesting that Congress add four Medicare beneficiary protections in the end-of-year Congressional health “extenders” legislation. The December 16 letter is here: PDF.

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Increasing Recognition of Persons with Co-Occurring ID/DD/and Mental Illness

There is increasing recognition of co-occurring ID/DD/MI. Available here are 6 resources: SAMHSA report The Arc report CQL Personal Outcomes Measures (POM) website posting HSRI National Core Indicators (NCI) data brief  NCBH special interest group launch ACL funded MH & DD national training center

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