Paralysis

Wellness for Women With Polio

Department of Physical Medicine and Rehabilitation Medicine, University of Michigan   Format             Curriculum This health promotion curriculum established for women with polio consisted of four, three-hour classes on physical activity, stress management, and nutrition, all of which were related to the late effects of polio. During the health education module, participants received individualized feedback in […]

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Paralyzed Veterans of America (PVA)

Format             Service Organization PVA, a congressionally chartered veterans service organization, works to maximize the quality of life for its members and all people with Spinal Cord Injury/Spinal Cord Diseases (SCI/D) as a leading advocate for health care, SCI/D research and education, veterans’ benefits and rights, accessibility and the removal of architectural barriers, sports programs, and […]

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Paralysis Resources: Sports and Recreation

BlazeSports America   Format             National organization   BlazeSports America provides sports training, competitions, summer camps and other sports and recreational opportunities for youth and adults who use wheelchairs, have a visual impairment, have an amputation, or who have a neurological disability such as cerebral palsy or spina bifida. Participant ages range, depending on the program, […]

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Paralysis Resources: Spinal Cord Injury

The Christopher and Dana Reeve Foundation   The Christopher and Dana Reeve Foundation              Format             Foundation                           The Christopher and Dana Reeve Foundation is dedicated to curing spinal cord injury by funding research and improving the quality of life for people living with paralysis through grants, information and advocacy.  In1982, the American Paralysis Association was […]

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The Spina Bifida Association (SBA)

Format             Association SBA is a national voluntary health agency serving adults and children living with spina bifida through education, advocacy, research, and service. SBA has a nationwide presence through its network of chapters, defined a research agenda at a conference entitled “Evidence-Based Practice in Spina Bifida”, encourages students with spina bifida through a series of […]

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Secondary Conditions webpage of The University of Alabama at Birmingham Model SCI Care System

Funded by a grant from the National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services, U.S. Department of Education   Format             Webpage         This webpage provides information on and links to the Secondary Conditions of Spinal Cord Injury Health Education Video Series, an 11-part video series intended to be useful […]

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Paralysis Programs and Resources: Multiple Sclerosis

“Healthy Living with MS”   National Multiple Sclerosis (MS) Society   Format             On-line articles According to the webpage of the National MS Society, “wellness is a dynamic state of physical, emotional, spiritual, and social well-being that can be achieved even in the presence of a chronic illness or disability.”  For people with MS, wellness involves […]

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Paralysis Programs and Resources: Exercise

“Fitness Programs for Children with Cerebral Palsy”, presented by Diane Damiano, Maria Fragala-Pinkham, Cindy Miles, Wayne Stuberg, and  Deborah Thorpe, August, 2006 The Pediatrics Section of the American Physical Therapy Association (APTA), hosted by Munroe-Meyer Institute, University of Nebraska Medical Center             Format             Course   This 2-day course was developed to disseminate information following the […]

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A Public Health Action Plan For Paralysis And Similar Mobility Impairments

Paralysis Task Force convened by the Christopher Reeve Paralysis Foundation and funded by the Centers for Disease Control and Prevention (CDC) Format             Public Health Action Plan       In 2004, the Paralysis Task Force met to develop a Public Health Action Plan for Paralysis, a draft of which was released for review by Task Force members.  Some […]

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“Executive Summary: Developing an Action Plan to Improve the Quality and the Quantity of Data about Paralysis”

September 2005   Format             Report   In October, 2004, researchers from the University of Kansas started a one-year project to: 1) investigate how paralysis is being measured in this country, 2) examine the validity of prevalence and incidence estimates based on these approaches, and 3) identify successful measurement reporting systems. Because data specific to paralysis […]

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