Paralysis

United Spinal Association: Life Where It’s Lived

United Spinal Association’s (www.unitedspinal.org) mission is to improve the quality of life for everyone with a spinal cord injury or disease (SCI/D). The association believes that even with a spinal cord injury or disease, a full, productive and rewarding life is within the reach of anyone with the strength to believe it and the courage… Read More »»

The Paralyzed Veterans Association’s (PVA) Sports & Recreation Program

Contact URL  http://www.pva.org/site/PageServer?pagename=sports_main

Health Promotion Resources: Paralysis

The Christopher and Dana Reeve Foundation   Contact URL http://www.christopherreeve.org/site/c.geIMLPOpGjF/b.1029229/k.C912/About_Us.htm   NextStepsNW Contact URL   http://www.nextstepsnw.org/   University of Kansas’ Medical Center and Research and Training Center on Independent Living: “Executive Summary: Developing an Action Plan to Improve the Quality and the Quantity of Data about Paralysis”, September 2005 Contact URL Visit Website  

Bowel Care

Christopher and Dana Reeve Paralysis Resource Center   Format             Webpage This webpage describes how the digestive tract works before and after paralysis; methods for emptying the bowel; the importance of individualizing each person’s bowel program, taking into account the diagnosis or nerve damage, as well as other factors; and important bowel  facts and tips. Contact… Read More »»

Bladder Management

 Christopher and Dana Reeve Paralysis Resource Center   Format             Webpage         This webpage describes how the bladder works before and after paralysis; why people with paralysis are at high risk for urinary tract infection (UTI); some of the symptoms of UTI; the importance of proper cleaning of urinary care supplies, keeping the skin clean, and… Read More »»

Wellness for Women With Polio

Department of Physical Medicine and Rehabilitation Medicine, University of Michigan   Format             Curriculum This health promotion curriculum established for women with polio consisted of four, three-hour classes on physical activity, stress management, and nutrition, all of which were related to the late effects of polio. During the health education module, participants received individualized feedback in… Read More »»

Paralyzed Veterans of America (PVA)

Format             Service Organization PVA, a congressionally chartered veterans service organization, works to maximize the quality of life for its members and all people with Spinal Cord Injury/Spinal Cord Diseases (SCI/D) as a leading advocate for health care, SCI/D research and education, veterans’ benefits and rights, accessibility and the removal of architectural barriers, sports programs, and… Read More »»

Paralysis Resources: Sports and Recreation

BlazeSports America   Format             National organization   BlazeSports America provides sports training, competitions, summer camps and other sports and recreational opportunities for youth and adults who use wheelchairs, have a visual impairment, have an amputation, or who have a neurological disability such as cerebral palsy or spina bifida. Participant ages range, depending on the program,… Read More »»

Paralysis Resources: Spinal Cord Injury

The Christopher and Dana Reeve Foundation   The Christopher and Dana Reeve Foundation              Format             Foundation                           The Christopher and Dana Reeve Foundation is dedicated to curing spinal cord injury by funding research and improving the quality of life for people living with paralysis through grants, information and advocacy.  In1982, the American Paralysis Association was… Read More »»

The Spina Bifida Association (SBA)

Format             Association SBA is a national voluntary health agency serving adults and children living with spina bifida through education, advocacy, research, and service. SBA has a nationwide presence through its network of chapters, defined a research agenda at a conference entitled “Evidence-Based Practice in Spina Bifida”, encourages students with spina bifida through a series of… Read More »»