New report by Families USA, is here: PDF
The American Association on Health and Disability plays an important role in disability policy and advocacy at the national level. AAHD strives to ensure that the needs of people with disabilities receive attention and respect on the national legislative agenda. AAHD is involved in numerous disability coalitions and networks that address the needs of people with disabilities. Please visit the Policy site to learn more about our activities in this area.
AAHD staff maintain an active role in Washington, DC to ensure that health promotion and wellness for people with disabilities is on the disability and healthcare agenda. AAHD staff have positions on the APHA, Disability Section, Executive Council; the CDC, NCBDDD, External Partner Group, Executive Committee; Consortium for Citizens with Disabilities-CCD and serve on the Christopher and Dana Reeve Paralysis Task Force; National Health Council; Coalition for Health Funding; Disability Rehabilitation and Research Coaltion; Coalition for Whole Health, Patient Care Primary Care Collaborative; and other coalitions advocating for policy that works towards reducing health disparities between people with disabilities and the general population and reducing the incidence of secondary conditions in children and adults with disabilities.
AAHD has joined a disability coalition, led by DREDF (Disability Rights Education and Defense Fund), and a broader health coalition, led by the American Heart Association (AHA), advocating a greater demographic variety in Food and Drug Administration (FDA) clinical trials.Download: Report and Response.
The Consortium for Citizens with Disabilities (CCD), including AAHD, have written Congressional leaders defending the SNAP program. The letter is here: PDF.
AAHD Joins Coalition Presenting a Services and Supports Plan Framework in Today’s Electronic Environment
The Consumer Partnership for e-Health (CPeH) released November 20 a Framework for “Care Plans” with an emphasis on consumer and family engagement. AAHD was actively engaged in developing the report and is cited in the CPeH press release. The report and press release are available for download.
National Quality Forum (NQF) Report to CMS (Centers on Medicare and Medicaid Services) on Quality Measures for Adults Receiving Medicaid
Final October 15 NQF report is here. AAHD serves on the NQF workgroup that developed the report. A few highlights include: 1. page 4 – measures “must be strengthened over time” 2. page 4 – Mental Health measures “are fairly narrow in scope” 3. page 4 – Access to Care measures are inadequate 4. page… Read More »»
November report of NDD United (Non-Defense Discretionary) United. The Coalition for Health Funding (CHF) is a NDD United leader. AAHD is a CHF member. Click to see report.
Available here is the March of Dimes led coalition letter to Congress on the PREEMIE Act.
Available here are the HHS letter to Congress and the National Health Council summary that medication patient assistance programs can be used with Affordable Care Act QHPs.
The November 8 rules are here: PDF. The analyses by American Psychiatric Association and Parity Implementation Coalition are here.
The Consortium for Citizens with Disabilities (CCD) Task Forces on Long Term Services and Supports and Health have written letters to House-Senate budget conferees emphasizing the importance of Medicaid to persons with disabilities. AAHD is a member of both CCD task forces. The letter and an addendum statement are here: