Social Participation

How does participation of youth with spina bifida vary by age?

BACKGROUND:  Youth with disabilities are at risk for decreased participation in community activities. However, little is known about participation at different developmental periods of childhood and adolescence among youth with spina bifida (SB) or whether child, family, and SB-associated factors influence participation. QUESTIONS/PURPOSES:  Our cross-sectional study examined participation among youth with SB and assessed how […]

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Determinants of social participation–with friends and others who are not family members–for youths with cerebral palsy.

BACKGROUND: Social participation provides youths with opportunities to develop their self-concept, friendships, and meaning in life. Youths with cerebral palsy (CP) have been reported to participate more in home-based leisure activities and to have fewer social experiences with friends and others than youths without disabilities. OBJECTIVE: The objective of this study was to identify youth, […]

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Youth with spina bifida and transitions: health and social participation in a nationally represented sample.

OBJECTIVE: To describe outcomes and identify factors that affect social participation in youth and young adults with spina bifida. STUDY DESIGN: Prospective data from a nationally representative survey of youth and young adults with disabilities were analyzed. The WHO ICF framework was used with participation as the dependent category and (a) body function/structure; (b) activities; […]

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Toward mobile phone design for all: meeting the needs of stroke survivors.

In the July-August 2008 issue of Topics in Stroke Rehabilitation, Greig and colleagues described a small, qualitative study of features of mobile phone handset design, documentation, and use that either enhance or hinder usability for people with aphasia. The authors noted that, despite considerable difficulties, study participants appreciated the social participation that mobile phones support. […]

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Sensory processing disorders and social participation.

Participation in social aspects of daily life is crucial to children’s development. Although disability status is recognized to affect children’s ability to participate in social activities, little is understood about the impact of sensory processing disorders (SPD) on children’s social participation. We examined the social participation patterns of 2 groups of children (ages 6-9): (1) […]

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Beyond my front door: the occupational and social participation of adults with spinal cord injury.

This study investigated how individuals in the community 1 to 5 years after spinal cord injury characterized their occupational and social participation, life satisfaction, and aspects of their occupational therapy that influenced their participation. Semi-structured, open-ended interviews were conducted with 11 individuals referred by occupational therapists who specialize in spinal cord injury rehabilitation and/or are […]

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Exploring communication assistants as an option for increasing communication access to communities for people who use augmentative communication.

This paper describes the results of a one-year intervention project that aimed to (a) learn about the communication supports required by people who use augmentative and alternative communication (AAC) when accessing their communities, (b) develop and implement a funded communication assistant service as an accessibility support option for people who use AAC when communicating in […]

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Social Participation Resources & Programs: Intellectual/Developmental Disabilities

Active Support (AS) Interventions and Their Effect on Increased Participation of Persons with Severe Impairments   Research and Training Center on Community Living of the University of Minnesota   Format             Study   AS is an organizational intervention to enable direct support professionals in community settings to effectively support the participation of people with intellectual/developmental disabilities […]

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Social Participation Resources & Programs: Measurement

  Assessment of Life Habits (LIFE-H) webpage       StrokEngine, in partnership with McGill University       Format             Webpage       LIFE-H was developed to assess the quality of social participation of people with disabilities by estimating how they accomplish activities of daily living and social roles. This website discusses the purpose […]

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Social Participation Resources & Programs: Augmentative and Alternative Communication

Augmentative and Alternative Communication (AAC) webpage The Barkley AAC Center and the Munroe-Meyer Institute for Genetics and Rehabilitation at the University of Nebraska   Format             Webpage   AAC strategies help people with severe communication disabilities participate more fully in their social roles and interpersonal interaction such as learning, community activities, employment, volunteerism, and care management. […]

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