Parents and Caregivers

Minority Research: Latino Population

A Look at the Decisions Hispanic Families Make After the Diagnosis of Deafness Annie Steinberg, M.D., Lisa Bain, M.A., Yuelin Li, Ph.D., Louise Montoya, M.A., N.C.C., C.S.C., and Vivian Ruperto of the Children’s Seashore House at The Children’s Hospital of Philadelphia Copyright © 2002 by Laurent Clerc National Deaf Education Center Gallaudet University, Washington, D.C. […]

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Early intervention screening for family caregivers of older relatives in primary care practices: establishing a community health service alliance in rural America.

The Maine Primary Partners in Caregiving project provides a prime example of how disparate community health, social service, and higher education institutions can build a successful rural service alliance for the purposes of screening for family members experiencing stress during the provision of care to impaired older relatives. Community primary care practices are featured as […]

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Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism.

BACKGROUND: Previous research has suggested that the mothers and fathers of children with disabilities experience stress differently. Although there has been a great deal of research exploring how children affect parents, there have been many fewer studies of the interrelationships between mothers’ and fathers’ psychological well-being. METHODS: Eighteen married couples who were the parents of […]

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Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism.

  BACKGROUND: Previous research has suggested that the mothers and fathers of children with disabilities experience stress differently. Although there has been a great deal of research exploring how children affect parents, there have been many fewer studies of the interrelationships between mothers’ and fathers’ psychological well-being.   METHODS: Eighteen married couples who were the […]

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Disability, spiritual beliefs and the church: the experiences of adults with disabilities and family members.

AIMS: This paper reports the findings of a qualitative interpretive study that explored how people with disabilities and family members use their spiritual beliefs to establish meaning for disability, and to respond to the challenges of lived experience with disability. The participants’ perceptions of the evangelical Christian church’s influence on their spiritual experiences related to […]

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Disability, social support, and concern for children: depression in mothers with multiple sclerosis.

OBJECTIVE: To investigate the relationship between disability, concern for children, social support, and depressive symptoms in a group of mothers with multiple sclerosis (MS). DESIGN: An exploratory secondary analysis using correlation and multiple regression techniques. SETTING AND PARTICIPANTS: Two hundred one women with MS responded to a survey as part of a cohort participating in […]

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Informal caregiving for diabetes and diabetic complications among elderly Americans.

OBJECTIVES: Little is known regarding the amount of time spent by unpaid caregivers providing help to elderly individuals for disabilities associated with diabetes mellitus (DM). We sought to obtain nationally representative estimates of the time, and associated cost, of informal caregiving provided to elderly individuals with diabetes, and to determine the complications of DM that […]

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Parental training and involvement in sexuality education for students who are deaf.

The study examined whether schools for the deaf were providing services to assist parents in communicating with their children about sexuality (including sexual signs) and whether parents were involved in the sexuality education curriculum within their child’s school. The Sexuality Curriculum Questionnaire for Educators of Students Who Are Deaf (Getch & Gabriel, 1998) was completed […]

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The Surgeon General’s Report and special-needs patients: a framework for action for children and their caregivers.

The Surgeon General’s Report, Oral Health in America, is the first comprehensive assessment of oral, dental, and craniofacial health in the history of our nation. The intent of this first-ever Report is to alert Americans to the full meaning of oral health and its importance to general health and well-being across the lifespan. Moreover, the […]

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