Parents and Caregivers

Advocating Lifespan Respite Care Support, Including for Veterans and Their Families

AAHD has joined a coalition of national organizations supporting federal government support for lifespan respite support; the August 15 letter is here: PDF.

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The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities

Woodman AC, Hauser-Cram P.  Department of Counseling, Developmental, and Educational Psychology, Boston College, Lynch School of Education, Chestnut Hill, Massachusetts, USA.  J Intellect Disabil Res. 2013 Jun;57(6):513-30. doi: 10.1111/j.1365-2788.2012.01555.x. Epub 2012 May 8. Background:  Parents of children with developmental disabilities (DD) face greater caregiving demands than parents of children without DD. There is considerable variability […]

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Depression among parents of children with disabilities

Resch JA, Elliott TR, Benz MR.  Center on Disability and Development, Department of Educational Psychology, Texas A&M University, College Station, TX 77843, USA.  Fam Syst Health. 2012 Dec;30(4):291-301. doi: 10.1037/a0030366. Epub 2012 Nov 12. We examined the rate of depression among 110 parents of children with disabilities and tested a model to determine the unique […]

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The role of staff in health promotion in community residences for people with intellectual disabilities: variation in views among managers and caregivers

Bergström H, Wihlman U. J Intellect Disabil. 2011 Sep;15(3):167-76. doi: 10.1177/1744629511424833. SOURCE:    Karolinska Institutet, Stockholm, Sweden. helena.bergstrom@ki.se Managers and caregivers in community residences for people with intellectual disabilities are expected both to promote residents’ health and to support their autonomy. The aim of this article was to explore variation in views among managers and caregivers […]

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From Serving in the Military to Serving Loved Ones: Unique Experiences of Older Veteran Caregivers

Monin JK, Levy BR, Pietrzak RH. Am J Geriatr Psychiatry. 2013 Mar 26. pii: S1064-7481(12)00096-6. doi: 10.1016/j.jagp.2012.11.023. [Epub ahead of print] SOURCE:  Social and Behavioral Sciences Division, Yale School of Public Health, Yale School of Medicine, New Haven, CT. Electronic address: joan.monin@yale.edu. OBJECTIVE:  We examined whether older caregiving veterans differ from noncaregiving veterans in terms […]

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Eliciting patient and caregiver perspectives to improve the public reporting of rehabilitation quality measures

Papadimitriou C, Magasi S, Demark H, Taylor C, Wolf MS, Heinemann AW, Deutsch A. Rehabil Nurs. 2013 Jan-Feb;38(1):24-31. doi: 10.1002/rnj.63. School of Nursing & Health Studies, Northern Illinois University, DeKalb, Illinois, USA. cpapadimitriou@niu.edu PURPOSE:  To evaluate patients’ and caregivers’ abilities to comprehend information on rehabilitation quality measures, and select high-quality rehabilitation facility. DESIGN:  We used […]

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To use or not to use. A literature review of factors that influence family caregivers’ use of support services.

Mast ME. J Gerontol Nurs. 2013 Jan;39(1):20-8; quiz 29. SOURCE:  Department of Nursing, James Madison University, Harrisonburg, VA, USA. mastme@jmu.edu Many family caregivers of frail older adults postpone or decline accessible and affordable services such as respite, despite their acknowledgement of unmet needs for support and time away from the burdens and stress of caregiving. […]

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Access to leave benefits for primary caregivers of children with special health care needs: a double bind

Chung PJ, Garfield CF, Elliott MN, Vestal KD, Klein DJ, Schuster MA. Acad Pediatr. 2013 May-Jun;13(3):222-8. doi: 10.1016/j.acap.2013.01.001. Epub 2013 Mar 9. SOURCE:  Department of Pediatrics, Mattel Children’s Hospital, David Geffen School of Medicine, University of California, Los Angeles, Calif; Department of Health Services, School of Public Health, University of California, Los Angeles, Calif; RAND, […]

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Caregivers of Alzheimer’s patients and factors influencing institutionalization of loved ones: some considerations on existing literature.

Sansoni J, Anderson KH, Varona LM, Varela G. Ann Ig. 2013 May-Jun;25(3):235-46. doi: 10.7416/ai.2013.1926. SOURCE:  Department of Public Health and Infectious Diseases, Nursing Research Unit, Sapienza University of Rome, Rome, Italy – School of Nursing, Georgia Southern University, Statesboro, GA, USA – School of Nursing, Florida International University, Miami, FL, USA. Background: Informal caring or […]

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Professional Caregivers’ Perceptions on how Persons with Mild Dementia Might Experience the Usage of a Digital Photo Diary

Harrefors C, Sävenstedt S, Lundquist A, Lundquist B, Axelsson K. Open Nurs J. 2012;6:20-9. doi: 10.2174/1874434601206010020. Epub 2012 Apr 2. SOURCE:  Department of Health Science, Luleå University of Technology, Luleå, Sweden. Cognitive impairments influence the possibility of persons with dementia to remember daily events and maintain a sense of self. In order to address these […]

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