Parents and Caregivers

Effectiveness of a multimedia outreach kit for families of wounded veterans

David Ian Walker, Ph.D., Jean-François Cardin, M.S., Neelu Chawla, M.S., David Topp, Ph.D., Thomaseo Burton, Ph.D., Shelley MacDermid Wadsworth, Ph.D Disability and Health Journal, Vol. 7, Issue 2, p216–225 Published online: November 11, 2013 DOI: http://dx.doi.org/10.1016/j.dhjo.2013.11.004 Background Young children in military families with a member who has a life changing injury can experience emotional difficulties […]

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The association of illness perceptions with depressive symptoms and general psychological distress in parents of an offspring with autism spectrum disorder

Dimitra Gatzoyia, M.Sc., Konstantinos Kotsis, M.D., Ph.D., Iouliani Koullourou, M.D., M.Sc., Panagiota Goulia, M.D., André F. Carvalho, M.D., Ph.D., Spyros Soulis, Ph.D., Thomas Hyphantis, M.D., Ph.D. Disability and Health Journal, Vol. 7, Issue 2, p173–180 Published online: November 11, 2013 DOI: http://dx.doi.org/10.1016/j.dhjo.2013.10.008 Background Raising a child with an autism spectrum disorder (ASD) is a severe […]

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Parent perceptions of autism severity: Exploring the social ecological context

Robert Hock, Ph.D., Brian K. Ahmedani, Ph.D. Published Online: August 06, 2012 Disability and Health Journal, October 2012 Volume 5, Issue 4, Pages 298–304 DOI: http://dx.doi.org/10.1016/j.dhjo.2012.06.002  Abstract Background Health professionals incorporate parent reports into the diagnosis and treatment of children with an autism spectrum disorder (ASD). Yet little is known about the contextual forces that may shape […]

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Parental psychological distress and quality of life after a prenatal or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy infants

Ana Fonseca, M.Sc., Bárbara Nazaré, M.Sc., Maria Cristina Canavarro, Ph.D. Faculty of Psychology and Educational Sciences, University of Coimbra, Coimbra, Portugal Disabilirty and Health Journal, April 2012, Volume 5, Issue 2, Pages 67–74 Published Online: December 30, 2011 DOI: http://dx.doi.org/10.1016/j.dhjo.2011.11.001   Abstract Background Parental early adjustment to a prenatal or postnatal diagnosis of congenital anomaly has been […]

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Health and educational status of children raised by a caregiver with a disability

Donna R. Miles, Michael J. Steiner, Karen J. Luken, Michael R. Sanderson, Tamera Coyne-Beasley, Harry Herrick, Elizabeth Mizelle, Carol A. Ford Disability and Health Journal Volume 4, Issue 3, Pages 185–191, July 2011 Published online: April 22, 2011   Abstract Background Research on children raised by adults with disability is limited. Our goal was to provide […]

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Perceived stigma, strain, and mental health among caregivers of veterans with traumatic brain injury

Sean M. Phelan, Joan M. Griffin, Wendy L. Hellerstedt, Nina A. Sayer, Agnes C. Jensen, Diana J. Burgess, Michelle van Ryn Disability and Health Journal, Volume 4, Issue 3 Published Online: March 21, 2011 p177–184 Published online: April 22, 2011   Abstract  Background Family caregivers of individuals with stigmatized conditions can experience stigma-by-association and discrimination. […]

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Parenting aggravation and autism spectrum disorders: 2007 National Survey of Children’s Health

Laura A. Schieve, Sheree L. Boulet, Michael D. Kogan, Marshalyn Yeargin-Allsopp, Coleen A. Boyle, Susanna N. Visser, Stephen J. Blumberg, Catherine Rice Disability and Health Journal Volume 4, Issue 3, Pages 143–152, July 2011   Abstract  Background Studies suggest autism spectrum disorders (ASDs) are associated with high parenting stress and aggravation. Research on specific risk factors […]

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Health and educational status of children raised by a caregiver with a disability

Donna R. Miles, Michael J. Steiner, Karen J. Luken, Michael R. Sanderson, Tamera Coyne-Beasley, Harry Herrick, Elizabeth Mizelle, Carol A. Ford Disability and Health Journal, issue 3, p. 185–191 Published online: April 22, 2011 Background Research on children raised by adults with disability is limited. Our goal was to provide a profile of the health […]

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Perceived stigma, strain, and mental health among caregivers of veterans with traumatic brain injury

Sean M. Phelan, Joan M. Griffin, Wendy L. Hellerstedt, Nina A. Sayer, Agnes C. Jensen, Diana J. Burgess, Michelle van Ryn Disability and Health Journal, issue 3, July 20122, p177–184 Published online: April 22, 2011 Background Family caregivers of individuals with stigmatized conditions can experience stigma-by-association and discrimination. Moderate-to-severe traumatic brain injury (TBI) may elicit a […]

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Parenting aggravation and autism spectrum disorders: 2007 National Survey of Children’s Health

Laura A. Schieve, Sheree L. Boulet, Michael D. Kogan, Marshalyn Yeargin-Allsopp, Coleen A. Boyle, Susanna N. Visser, Stephen J. Blumberg, Catherine Rice Background Studies suggest autism spectrum disorders (ASDs) are associated with high parenting stress and aggravation. Research on specific risk factors is needed. Objective/Hypotheses To assess aggravation level among parents of children with and […]

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