Adults aging ‘with’ and ‘into’ paralysis: Epidemiological analyses of demography and health

  Alicia Dixon-Ibarra, Ph.D., M.P.H., Gloria Krahn, Ph.D., M.P.H., Heidi Fredine, M.P.H., Anthony Cahill, Ph.D., Susan Jenkins, Ph.D. Disability and Health Journal, Volume 9, Issue 4 Published online: June 21, 2016 DOI: Background Survival for many individuals with paralysis is increasing, making this population a larger subset of the aging population (Molton, & Jensen, 2010). Yet little is known about… Read More »»

Weight loss intention, dietary behaviors, and barriers to dietary change in veterans with lower extremity amputations

A.J. Littman, Ph.D., L.V. McFarland, Ph.D., M.L. Thompson, Ph.D., E.D. Bouldin, M.P.H.,D.E. Arterburn, M.D., B.R. Majerczyk, M.P.H., E.J. Boyko, M.D. Disability and Health Journal, Volume 8, Issue 3, Pages 325–335 Published Online: November 29, 2014 DOI:| Background Obesity is thought to be highly prevalent in persons with lower extremity amputations (LEAs) and can impair physical and social functioning. Objective… Read More »»

Social support, depression, and physical disability: Age and diagnostic group effects

Mark P. Jensen, Ph.D., Amanda E. Smith, B.S., Charles H. Bombardier, Ph.D., Kathryn M. Yorkston, Ph.D., Jordi Miró, Ph.D., Ivan R. Molton, Ph.D. Disability and Health Journal, Vol. 7, Issue 2, p164–172 Published online: November 11, 2013 DOI:  Background Social support is an important resource that may benefit individuals aging with physical disabilities, although… Read More »»

United Spinal Association: Life Where It’s Lived

United Spinal Association’s ( mission is to improve the quality of life for everyone with a spinal cord injury or disease (SCI/D). The association believes that even with a spinal cord injury or disease, a full, productive and rewarding life is within the reach of anyone with the strength to believe it and the courage… Read More »»

The Paralyzed Veterans Association’s (PVA) Sports & Recreation Program

Contact URL

Health Promotion Resources: Paralysis

The Christopher and Dana Reeve Foundation   Contact URL   NextStepsNW Contact URL   University of Kansas’ Medical Center and Research and Training Center on Independent Living: “Executive Summary: Developing an Action Plan to Improve the Quality and the Quantity of Data about Paralysis”, September 2005 Contact URL Visit Website  

Bowel Care

Christopher and Dana Reeve Paralysis Resource Center   Format             Webpage This webpage describes how the digestive tract works before and after paralysis; methods for emptying the bowel; the importance of individualizing each person’s bowel program, taking into account the diagnosis or nerve damage, as well as other factors; and important bowel  facts and tips. Contact… Read More »»

Bladder Management

 Christopher and Dana Reeve Paralysis Resource Center   Format             Webpage         This webpage describes how the bladder works before and after paralysis; why people with paralysis are at high risk for urinary tract infection (UTI); some of the symptoms of UTI; the importance of proper cleaning of urinary care supplies, keeping the skin clean, and… Read More »»

Wellness for Women With Polio

Department of Physical Medicine and Rehabilitation Medicine, University of Michigan   Format             Curriculum This health promotion curriculum established for women with polio consisted of four, three-hour classes on physical activity, stress management, and nutrition, all of which were related to the late effects of polio. During the health education module, participants received individualized feedback in… Read More »»

Paralyzed Veterans of America (PVA)

Format             Service Organization PVA, a congressionally chartered veterans service organization, works to maximize the quality of life for its members and all people with Spinal Cord Injury/Spinal Cord Diseases (SCI/D) as a leading advocate for health care, SCI/D research and education, veterans’ benefits and rights, accessibility and the removal of architectural barriers, sports programs, and… Read More »»