Muscular Dystropjy

Enablers and barriers of men with Duchenne muscular dystrophy transitioning from an adult clinic within a pediatric hospital

Sally Lindsay, Ph.D., Laura McAdam, M.D., Tania Mahendiran, B.Sc. (Candidate) Disability and Health Journal, January 2017, Volume 10, Issue 1, Pages 73–79 DOI: http://dx.doi.org/10.1016/j.dhjo.2016.10.002   Background Young men with Duchenne muscular dystrophy (DMD) live into adulthood and need specialized care. However, services for adults are fragmented. We know little about young men’s experiences, their parents, and clinicians who support them […]

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Effects of pain and fatigue on physical functioning and depression in persons with muscular dystrophy

Kevin N. Alschuler, Ph.D., Mark P. Jensen, Ph.D., Mark C. Goetz, Ph.D., Amanda E. Smith, B.S., Aimee M. Verrall, M.P.H., Ivan R. Molton, Ph.D. Department of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, WA, USA Published Online: August 06, 2012 Disability and Health Journal, October 2012 Volume 5, Issue 4, Pages 277–283 DOI: http://dx.doi.org/10.1016/j.dhjo.2012.07.002   […]

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Body mass index and waist circumference in persons aging with muscular dystrophy, multiple sclerosis, post-polio syndrome, and spinal cord injury

Kevin N. Alschuler, Ph.D., Laura E. Gibbons, Ph.D., Dori E. Rosenberg, Ph.D., M.P.H., Dawn M. Ehde, Ph.D., Aimee M. Verrall, M.P.H., Alyssa M. Bamer, M.P.H., Mark P. Jensen, Ph.D. Published Online: May 04, 2012 Disability and Health Journal, July 2012 Volume 5, Issue 3, Pages 177–184 DOI: http://dx.doi.org/10.1016/j.dhjo.2012.03.007 Abstract Background Body mass index (BMI) and waist circumference […]

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Bladder dysfunction in Duchenne muscular dystrophy.

Although bladder function is thought to be unaffected in Duchenne muscular dystrophy, 46/88 boys interviewed had urinary problems. Nine underwent video urodynamics, showing in eight a small capacity, hyperreflexic bladder, and in the ninth (post spinal surgery) hyperreflexia and detrusor sphincter dyssynergia. Urinary dysfunction is a treatable feature of DMD.

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