Healthcare Transition

The Cash and Counseling model of self-directed long-term care: Effectiveness with young adults with disabilities

Melissa L. Harry, Ph.D., M.S.W, Kevin J. Mahoney, Ph.D., M.S.W., Ellen K. Mahoney, Ph.D., Ce Shen, Ph.D. Disability and Health Journal, Vol. 10, Issue 4, p492–501 DOI: http://dx.doi.org/10.1016/j.dhjo.2017.03.001   Background Young adults with disabilities face numerous barriers to independence and achieving markers of adulthood. Qualitative evidence suggests that flexible, self-directed budgets for purchasing home and community-based services might help fill an identified […]

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“Thrust into adulthood”: Transition experiences of young adults with cerebral palsy

  Nancy Bagatell, Ph.D., OTR/L., Dara Chan, Sc.D., CRC., Kimberly Karrat Rauch, D.O., Deborah Thorpe, Ph.D., PT. Disability and Health Journal, January 2017, DOI: http://dx.doi.org/10.1016/j.dhjo.2016.09.008   Background The transition to adulthood, the gradual change in roles and responsibilities, is identified as a challenging time for adolescents and young adults with physical disabilities, including those with cerebral palsy. Health care, […]

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Youth and parents’ experiences of a new inter-agency transition model for spina bifida compared to youth who did not take part in the model

Sally Lindsay, Ph.D., Melissa Fellin, Ph.D., Heather Cruickshank, B.A., Amy McPherson, Ph.D., Joanne Maxwell, M.Sc. Disability and Health Journal, Volume 9, Issue 4 Published online: May 27, 2016 DOI: http://dx.doi.org/10.1016/j.dhjo.2016.05.009 Background Young adults with spina bifida are underserved in health care and are at risk as they transition to adult health care. A pediatric rehabilitation hospital and […]

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Adults aging ‘with’ and ‘into’ paralysis: Epidemiological analyses of demography and health

  Alicia Dixon-Ibarra, Ph.D., M.P.H., Gloria Krahn, Ph.D., M.P.H., Heidi Fredine, M.P.H., Anthony Cahill, Ph.D., Susan Jenkins, Ph.D. Disability and Health Journal, Volume 9, Issue 4 Published online: June 21, 2016 DOI: http://dx.doi.org/10.1016/j.dhjo.2016.06.003 Background Survival for many individuals with paralysis is increasing, making this population a larger subset of the aging population (Molton, & Jensen, 2010). Yet little is known about […]

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A wellness program for individuals with disabilities: Using a student wellness coach approach

Hui-Ju Young, Ph.D., Melissa L. Erickson, M.S., Kristen B. Johnson, B.S., R.D., L.D., Mary Ann Johnson, Ph.D., Kevin K. McCully, Ph.D. Disability and Health Journal Published July 2015 Volume 8, Issue 3, Pages 345–352 DOI: http://dx.doi.org/10.1016/j.dhjo.2014.12.003 Background Individuals with disabilities are at higher risk of health conditions; thus, there is a need to provide hands-on opportunities for pre-healthcare professionals to interact with […]

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Nursing home emancipation: A preliminary study of efforts by centers for independent living in urban and rural areas

Tom Seekins, Ph.D., Craig Ravesloot, Ph.D., Marsha Katz, M.S., Bob Liston, M.S., Mike Oxford, B.A., Billy Altom, B.A., Glen White, Ph.D., Richard Petty, M.B.A., Bob Kafka, M.Ed. Disability and Health Journal Volume 4, Issue 4, Pages 245–253, October 2011   Abstract Background The U.S. Supreme Court’s Olmstead decision affirmed the right of individual with disabilities to […]

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Healthcare Transition Research: Access to Care

Access to care for youth with special health care needs in the transition to adulthood. Lotstein DS, Inkelas M, Hays RD, Halfon N, Brook R.  Department of Pediatrics, David Geffen School of Medicine, University of California-Los Angeles, Los Angeles, California 90024, USA. dlotstein@mednet.ucla.edu  J Adolesc Health. 2008 Jul;43(1):23-9. Epub 2008 Apr 25.  Comment in: J […]

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Healthcare Transition Research: Providers (Nurses, Professionals)

Dimensions of the transition service coordinator role. Betz CL, Redcay G.  University of Southern California Center for Excellence in Developmental Disabilities, Children’s Hospital, Los Angeles, USA.  J Spec Pediatr Nurs. 2005 Apr-Jun;10(2):49-59. ISSUES AND PURPOSE: This article describes the development and implementation of an innovative advanced practice role, as a transition service coordinator for nurses […]

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Health Care Transitions: Web, Video and Print Resources

Health Care Transitions:  Web, Video and Print Resources The Institute for Child Health Policy at the University of Florida   Format             Webpage   This webpage provides information on a variety of web, video, and print resources in the area of health care transitions of teens with special health care needs.  Included are written transition guides, health […]

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Health Care Checklist

The Illinois Division of Specialized Care for Children, The University of Illinois at Chicago, adapted from the health care checklist developed by the State of Washington’s Adolescent Health Transition Project, California’s Healthy and Ready to Work (HRTW) Transition Health Care Assessment, and Massachusetts’ Health Care Skills Checklist.   Format             Checklist   The Health Care Checklist […]

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