Developmental Disabilities

Caregivers’ effect on weight management in adults with intellectual and developmental disabilities

L.T. Ptomey, Ph.D., R.D., L.D., C.A. Gibson, Ph.D., J. Lee, Ph.D., D.K. Sullivan, Ph.D., R.D., R.A. Washburn, Ph.D , A.M. Gorczyca, Ph.D, J.E. Donnelly, Ep.D. Disability and Health Journal, Vol. 10, Issue 4, p542–547 DOI:   Introduction Caregivers of adults with IDD often play a large role in the ability of adults with IDD to lose weight. Objective The purpose of this study… Read More »»

Dietary and physical activity behaviors of adults with developmental disabilities and their direct support professional providers

Kendall A. Leser, Ph.D., Phyllis L. Pirie, Ph.D., Amy K. Ferketich, Ph.D., Susan M. Havercamp, Ph.D.,Mary Ellen Wewers, Ph.D., M.P.H. Disability and Health Journal, Vol. 10, Issue 4, p532–541 DOI:   Background People with developmental disabilities lead more sedentary lifestyles, consume poorer diets, as well as have higher rates of chronic conditions such as diabetes and heart disease when compared to… Read More »»

Birth outcomes among US women with intellectual and developmental disabilities

Ilhom Akobirshoev, PhD, MA, MSW, Susan L. Parish, PhD, MSW, Monika Mitra, PhD, Eliana Rosenthal Disability and Health Journal, Vol. 10, Issue 3, p406–412 DOI:   Background Women with intellectual and developmental disabilities (IDD) are bearing children at increasing rates. However, there is very little research about pregnancy experiences and birth outcomes among women with IDD. No studies to date have… Read More »»

Sexual health in the community: Services for people with intellectual and developmental disabilities

    Carli Friedman, PhD, Aleksa L. Owen, MSW PhD Candidate Disability and Health Journal, Vol. 10, Issue 3, p387–393 DOI:   Background Sexuality is a central dimension of overall health and well-being. People with intellectual and developmental disabilities (IDD) continue to experience disparities in healthcare, particularly regarding access to sexual health related services. Medicaid Home and Community-Based Services… Read More »»

You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities

Katherine E. McDonald, Ph.D, Erin Stack, M.S. Disability and Health Journal, Volume 9, Issue 2 Published online: January 03, 2016 DOI: Background Community-based participatory research (CBPR) seeks to improve the responsiveness of science to community priorities and foster positive community change through equitable research collaborations between scientists and community members. CBPR resonates with disability rights… Read More »»

National health surveillance of adults with disabilities, adults with intellectual and developmental disabilities, and adults with no disabilities

Susan M. Havercamp, Ph.D., Haleigh M. Scott, M.A. The Ohio State University Nisonger Center, 1581 Dodd Dr, Columbus, OH 43210, USA DOI: Background People with disabilities experience worse health and poorer access to health care compared to people without disability. Large-scale health surveillance efforts have largely excluded adults with intellectual and developmental disability. This… Read More »»

Feelings of loss in parents of children with infantile cerebral palsy

Manuel Fernández-Alcántara, M.Sc., M. Paz García-Caro, Ph.D., Carolina Laynez-Rubio, Ph.D., M. Nieves Pérez-Marfil, Ph.D., Celia Martí-García, Ph.D., Ángela Benítez-Feliponi, Ph.D., Marta Berrocal-Castellano, M.Sc., Francisco Cruz-Quintana, Ph.D. Disability and Health Journal, Vol. 8, Issue 1, p93–101 Published online: June 30 2014 Abstract Background Raising a child diagnosed with infantile cerebral palsy is a challenge for… Read More »»

Does race influence age of diagnosis for children with developmental delay?

Joshua R. Mann, M.D., M.P.H., Sarah Crawford, M.S., Lesly Wilson, Ph.D., O.T.R./L., Suzanne McDermott, Ph.D.† This project was funded by the Centers for Disease Control (CDC) Health and Disability Cooperative Agreement U59/CCU421834. Disability and Health Journal  July 2008 Volume 1, Issue 3, Pages 157–162 DOI: Abstract Background Early identification of developmental delay is important for ensuring… Read More »»

Association between parental nativity and autism spectrum disorder among US-born non-Hispanic white and Hispanic children, 2007 National Survey of Children’s Health

Laura A. Schieve, Ph.D., Sheree L. Boulet, Dr.P.H., Stephen J. Blumberg, Ph.D., Michael D. Kogan, Ph.D., Marshalyn Yeargin-Allsopp, M.D., Coleen A. Boyle, Ph.D., Susanna N. Visser, M.S., Catherine Rice, Ph.D. Disability and Health Journal Volume 5, Issue 1, Pages 18–25, January 2012 Published Online: November 04, 2011 DOI:   Abstract Background Limited studies suggest the… Read More »»

Parenting aggravation and autism spectrum disorders: 2007 National Survey of Children’s Health

Laura A. Schieve, Sheree L. Boulet, Michael D. Kogan, Marshalyn Yeargin-Allsopp, Coleen A. Boyle, Susanna N. Visser, Stephen J. Blumberg, Catherine Rice Disability and Health Journal Volume 4, Issue 3, Pages 143–152, July 2011   Abstract  Background Studies suggest autism spectrum disorders (ASDs) are associated with high parenting stress and aggravation. Research on specific risk factors… Read More »»