Chronic Conditions

Promoting Health and Preventing Disease for People with Disabilities: The Unique Role of the Division of Human Development and Disability, Centers for Disease Control and Prevention (Episode 2)

A 4-part webinar series co-sponsored by the American Association on Health and Disability (AAHD) and the American Association on Intellectual and Developmental Disabilities (AAIDD). CDC’s Life Course Model for Children and Young Adults with Chronic Conditions This webinar will focus on CDC’s Life Course Model and public health approach for rare and complex disabling conditions, […]

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Capability and clinical success.

Better outcomes for chronic diseases remain elusive because success depends on events outside the control of the health care system: patients’ ability to mange their health behaviors and chronic diseases. Among the most powerful influences on self-management are the social and environmental constraints on healthy living, yet the clinical response to these environmental determinants is […]

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Health Education Research: Education of Caregivers, Consumers, & Families

Sexuality issues and gynecologic care of adolescents with developmental disabilities. Greydanus DE, Omar HA.  Pediatrics and Human Development, Michigan State University College of Human Medicine, Michigan State University/Kalamazoo Center for Medical Studies, 1000 Oakland Drive, Kalamazoo, MI 49008-1284, USA. Greydanus@kcms.msu.edu  Pediatr Clin North Am. 2008 Dec;55(6):1315-35, viii. All human beings are sexual from birth to […]

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Insuring continuity of care for chronic disease patients after a disaster: key preparedness elements.

BACKGROUND: Care for patients with chronic diseases is a challenge after a disaster. This is particularly true for individuals from health disparate populations as they are less likely to evacuate, have fewer financial resources and often depend on resource-strapped institutions for their care. The specific aim of the study presented here was to elicit challenges […]

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Healthcare Transition Research: Access to Care

Access to care for youth with special health care needs in the transition to adulthood. Lotstein DS, Inkelas M, Hays RD, Halfon N, Brook R.  Department of Pediatrics, David Geffen School of Medicine, University of California-Los Angeles, Los Angeles, California 90024, USA. dlotstein@mednet.ucla.edu  J Adolesc Health. 2008 Jul;43(1):23-9. Epub 2008 Apr 25.  Comment in: J […]

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Feeding difficulties in children and adolescents with chronic illness.

Good health demands good nutrition and in the child it is reflected in normal growth. Children who cannot or do not eat properly often become unwell and do not grow. This becomes a source of great concern and anxiety for their parents. Several chronic illnesses in children impair normal feeding; this article aims to describe […]

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Disaster preparedness and the chronic disease needs of vulnerable older adults.

About 80% of older adults have at least one chronic condition that makes them more vulnerable than healthy people during a disaster. These chronic conditions – combined with the physiological, sensory, and cognitive changes experienced as part of aging – result in frail older adults having special needs during emergencies. Planning and coordination among public […]

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Assessing emergency preparedness of families caring for young children with diabetes and other chronic illnesses.

PURPOSE: To help children with chronic illnesses and their caregivers assess emergency preparedness. CONCLUSIONS: Little work has been done to ascertain patient adherence levels to these recommendations. Additionally, little is known about the seeking patterns of healthcare providers and/or changes in interventions based on certain elements of emergency preparedness, such as the presence of medical […]

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Exercise Research: Exercise Recommendations

Exercise for patients with chronic disease: physician responsibility. Painter P. Department of Physiological Nursing, University of California at San Francisco, Box 0610 UCSF, 2 Koret Way, Room 605C, San Francisco, CA 94143-0610, USA. painter@itsa.ucsf.edu Curr Sports Med Rep. 2003 Jun;2(3):173-80. Patients with chronic disease typically become severely deconditioned, which often leads to physical disability. Every […]

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Changing the chronic care system to meet people’s needs.

Persons who are likely to be the heaviest users of medical and supportive care services—those with chronic illnesses, disabilities, and functional limitations—are often forced to navigate a system that requires them to perform most of the coordination functions themselves and is generally not organized around their needs. In 1996 an estimated 128 million Americans had […]

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