Enablers and barriers of men with Duchenne muscular dystrophy transitioning from an adult clinic within a pediatric hospital

Sally Lindsay, Ph.D., Laura McAdam, M.D., Tania Mahendiran, B.Sc. (Candidate) Disability and Health Journal, January 2017, Volume 10, Issue 1, Pages 73–79 DOI:   Background Young men with Duchenne muscular dystrophy (DMD) live into adulthood and need specialized care. However, services for adults are fragmented. We know little about young men’s experiences, their parents, and clinicians who support them… Read More »»

Balance training improves postural balance, gait, and functional strength in adolescents with intellectual disabilities: Single-blinded, randomized clinical trial

Kyeongjin Lee, Ph.D., Myungmo Lee, Ph.D., Changho Song, Ph.D. Disability and Health Journal, Volume 9, Issue 3 Published online: February 15, 2016 DOI: Background Adolescents with intellectual disabilities often present with problems of balance and mobility. Balance training is an important component of physical activity interventions, with growing evidence that it can be beneficial for people with… Read More »»

Using pedometers to measure moderate-to-vigorous physical activity for youth with an intellectual disability

Michael W. Beets, M.P.H., Ph.D., Kenneth H. Pitetti, Ph.D. Published Online: April 09, 2010 DOI: Background: Pedometers serve as one of the most feasible and cost-effective methods for frontline practitioners to measure moderate-to-vigorous physical activity (MVPA) of youth with an intellectual disability (YwID) but, historically, pedometers have been unable to measure MVPA. Technological advancements now… Read More »»

The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities

Woodman AC, Hauser-Cram P.  Department of Counseling, Developmental, and Educational Psychology, Boston College, Lynch School of Education, Chestnut Hill, Massachusetts, USA.  J Intellect Disabil Res. 2013 Jun;57(6):513-30. doi: 10.1111/j.1365-2788.2012.01555.x. Epub 2012 May 8. Background:  Parents of children with developmental disabilities (DD) face greater caregiving demands than parents of children without DD. There is considerable variability… Read More »»

Barriers and facilitators to treatment participation by adolescents in a community mental health clinic

Oruche UM, Downs S, Holloway E, Draucker C, Aalsma M. J Psychiatr Ment Health Nurs. 2013 May 17. doi: 10.1111/jpm.12076. [Epub ahead of print] Department of Environments for Health, Indiana University School of Nursing. A large number of children drop out or stop attending their mental health counseling appointments before they actually complete all the… Read More »»

Are adolescent girls with a physical disability at increased risk for sexual violence?

Alriksson-Schmidt AI, Armour BS, Thibadeau JK.  Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, Atlanta, GA 30333, USA.  J Sch Health. 2010 Jul;80(7):361-7. doi: 10.1111/j.1746-1561.2010.00514.x. BACKGROUND: The purpose of this study was to investigate whether US female adolescents who self-reported having a physical disability or long-term health problem… Read More »»

Obesity and overweight prevalence among adolescents with disabilities

Rimmer JH, Yamaki K, Davis BM, Wang E, Vogel LC.  Center on Health Promotion Research for Persons with Disabilities, Department of Disability and Human Development, University of Illinois at Chicago, Chicago, IL 60608-6904, USA.  Prev Chronic Dis. 2011 Mar;8(2):A41. Epub 2011 Feb 15. INTRODUCTION:  We examined overweight and obesity prevalence among adolescents with disabilities… Read More »»

Supporting students with disabilities–promoting understanding amongst mentors in practice

Tee S, Cowen M.  Faculty of Health Sciences, University of Southampton, Southampton, United Kingdom.  Nurse Educ Pract. 2012 Jan;12(1):6-10. doi: 10.1016/j.nepr.2011.03.020. Epub 2011 Apr 21. INTRODUCTION: Good practice demands a clinical practice culture positively disposed to students with disabilities. Equality legislation seeks to protect those with a disability from either direct or indirect discrimination.… Read More »»

Evaluation of an Activities of Daily Living Scale for Adolescents and Adults With Developmental Disabilities

Activity limitations are an important and useful dimension of disability, but there are few validated measures of activity limitations for adolescents and adults with developmental disabilities. This evaluation set out to describe the development of the Waisman Activities of Daily Living (W-ADL) Scale for adolescents and adults with developmental disabilities, and systematically evaluate its measurement… Read More »»

Family Center on Technology and Disability (FCTD)

Academy for Educational Development, through program support from the Department of Education’s Office of Special Education Programs (OSEP)   Format             Network organization FCTD supports organizations and programs that work with families of children and youth with disabilities, offering a range of information and services on the subject of assistive technologies. FCTD provides information on its… Read More »»