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COVID-19: Protecting the Health of Older Adults Legislation

AAHD has joined 40 organizations, led by TFAH, endorsing legislation by 4 House members (Frankel-FL; Bilirakis-FL; Dingell-MI; and Shalala-FL) to target federal resources to the health of older adults during the COVID-19 crisis. Available here are the TFAH fact sheet, listing the 40 organizations; the legislative text; and the press release of lead sponsor Representative […]

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Advisory Committee on Heritable Disorders in Newborns and Children

AAHD has joined a coalition, led by the March of Dimes, requesting the HHS Secretary to resume the work of the ACHDNC. The December 19 letter is here: PDF.

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AAHD Call to Action to Promote the All of Us Research Program to People with Disabilities

AAHD is challenging the disability community to learn about the All of Us Research Program and consider participation with a Call to Action. The All of Us Research Program is seeking to improve precision medicine and the Call to Action emphasizes the fact that All of Us is encouraging groups to participate that have been […]

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Advocates Object to Arkansas Waiver Resulting in 12,277 Losing Medicaid Eligibility

AAHD has joined over 50 organizations, organized by the Medicaid Waiver Coalition, writing HHS objecting to a waiver that has resulted in the loss of Medicaid eligibility for 12,277 persons. The Nov 21 letter is here: PDF.

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Aligning Health and Substance Use Treatment Medical Records (HR 6082)

AAHD has joined 221 organizations, led by the Partnership to Amend 42 CFR Part 2, encouraging the U.S. Senate to pass House passed legislation (HR 6082) to align HIPAA & 42 CFR requirements. The November 16 letter is here: PDF.

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ACL Statement on Implementation of the Family Caregivers Act

Available here is the August 31 Administration for Community Living (ACL) response to the June 28 AARP led coalition letter on the need for an effective implementation of RAISE (Recognize, Assist, Include, Support, and Engage Family Caregivers). Both letters are available here: ACL Response letter;  Letter 2

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Reauthorizing the Children’s Health Insurance Program (CHIP)

AAHD has joined the Mental Health Liaison Group (MHLG) in supporting the reauthorization of CHIP. The April 28 letter is here: PDF.

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Complex Rehabilitation Support for Medicare Beneficiaries with Disabilities

AAHD has joined the Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition advocating additional complex rehabilitation technologies through Medicare. The March 31 letter to Congress and the April 5 letter to the HHS Secretary are here.

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Legislation Would Exempt Employer Wellness Programs from Americans with Disabilities Act (ADA) Protections

AAHD has joined advocates for the ADA and Genetic Nondiscrimination opposing legislation (HR 1313) to allow employer wellness programs to ignore the ADA and genetic nondiscrimination protections. The March 7 letter is here: PDF.

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Non-Defense Discretionary Federal Programs Funding

AAHD has joined 2,000 organizations, led by NDD United (Non-Defense Discretionary) seeking adequate funding of these programs. The March 1 statement listing the 2,000 organizations and NDD United statement are here:

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