Policy Updates

Lifespan Respite Care – Senate Reauthorizes Federal Program

AAHD has joined a coalition of national organizations supporting the Senate reauthorization of national respite programs. The October 31 letter is here: PDF.

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Person-Patient Reported Quality Measurement

AAHD and the Lakeshore Foundation have submitted comments to/on the National Quality Forum draft environmental scan report for public comment on “patient reported outcomes.” The October 29 letter is here: PDF.

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Integrating Health/Medical with Substance Use Disorder Records to Integrate Services and Supports

AAHD has joined the Partnership To Amend 42 CFR Part 2 in commenting to SAMHSA on proposed rules on record confidentiality. The October 25 comments are here: PDF.

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CDC Annual Appropriations

AAHD has joined the CDC Coalition requesting solid CDC funding in any House-Senate conference committee. Available here are the October 23 letters to the House and Senate.

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Disability Community Concerns with QALYs – (Quality Adjusted Life Years)

AAHD has joined the Partnership To Improve Patient Care (PIPC) in objecting to continued use of QALYs in the latest Institute for Clinical and Economic Review (ICER) value framework. The October 18 PIPC letter is here: PDF.

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Reauthorizing the Medicaid Money Follows the Person Program (S. 548/HR 1342)

AAHD has joined the Consortium for Citizens with Disabilities (CCD) and Disability and Aging Collaborative (DAC) requesting Congress to provide a long-term (5 year) reauthorization of the Medicaid MFP program. The October 17 CCD-DAC letter on the EMPOWER Act legislation is here: PDF.

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Federal Legislation To Assist Communities Preventing and Dealing with Trauma (S. 1770/HR 3180)

AAHD has joined the Mental Health Liaison Group (MHLG) supporting the Resilience Investment, Support, and Expansion (RISE) from Trauma. The October 16 MHLG letter is here: PDF.

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Legislation Enhancing Access to Medicare Medications (HR 3) (#2)

AAHD has joined the Medicare Access for Patients Rx (MAPRx) letter to the House of Representatives on HR 3 (access to Medicare medications). The October 16 MAPRx letter is here: PDF.

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Medicare Part D Medications – Annual Open Enrollment Guide

AAHD has joined the Medicare Access for Patients Rx (MAPRx) annual Medicare Part D open enrollment guide. The guide is here: PDF.

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House and Senate Legislation Introduced to Support – Direct Care Workers, Including Direct Support Professionals (HR 4397/S. 2521)

Available here are: (1) Legislative Sponsors September 19 statement; (2) House Committee on Education and Labor fact sheet; (3) House legislation bill text; and (4) Arc September 23 statement of support

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