Policy Updates

Measuring Healthcare Quality for Persons Dually Eligible for Medicare and Medicaid: Measures Are Not Yet Available

The National Quality Forum (NQF) Measure Applications Partnership (MAP) is a public-private partnership for providing input to HHS (Department of Health and Human Services) on performance measures in federally financed health services programs. MAP has published its year one status report on performance measures for persons dually eligible for Medicare and Medicaid. The report is […]

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Advocating the Patient Experience Formalized in the FDA Regulatory Process

On May 30, the National Health Council (NHC) wrote the Food and Drug Administration (FDA) suggesting formalized procedures for including the patient experience in FDA regulatory process. AAHD is a NHC member. The letter is available for download: PDF.

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53 House Members Express Concern to CDC on Disability Proposed Program Consolidation

On May 30, 53 members of the U.S. House of Representatives wrote CDC expressing grave concerns about proposed disability program consolidations. The letter is available for download: PDF.

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AAHD Engages National Quality Forum on Disability Performance Measures

As part of the Medicaid Disability Managed Care Collaborative and as a representative of the Consortium for Citizens with Disabilities (CCD) Task Force on Long Term Services and Supports, AAHD is working with the National Quality Forum (NQF) and its Measure Applications Partnership (MAP).  To visit the MAP home page, click here. For the MAP […]

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AAHD – Disability Community Seeks to Keep Census Bureau Disability Survey Alive

On May 23, 39 national organizations, including AAHD, of the Consortium for Citizens with Disabilities (CCD) wrote Senate supporters requesting that the Census Bureau’s American Community Survey (ACS) be retained. The ASC includes six standardized disability questions, a recent development. The House of Representatives voted to terminate funding for the ASC. The CCD letter is […]

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Strengthening SSI for Children with Severe Disabilities

On May 8, 42 national disability associations, including AAHD, issued a statement on the need to strengthen the Supplemental Security Income (SSI) for children with severe disabilities. The statement is available here: PDF.

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The “Meaningful Use” of Electronic Health Records (EHRs)

On May 7, the Consumer Partnership for e-Health (CPeH) wrote CMS (Centers for Medicare and Medicaid), on behalf of 25 endorsing organizations, including AAHD, advocating a consumer benefit to federal EHR regulations that are intended to promote “meaningful use” (MU). Federal law requires EHRs to “meaningfully” improve patient care and outcomes. The May 7 letter […]

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AAHD Joins 87 Organizations Opposing House Committee Termination of Social Services Block Grant Program

AAHD has joined 86 other organizations opposing the House Ways and Means Committee termination of the Social Services Block Grant, authorized by Title XX of the Social Security Act. The letter and Title XX impact on persons with disabilities and Title XX impact on child welfare services. are available for download: PDF.

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Supporting Respite and Family Caregivers

On May 2, AAHD joined 34 other national associations advocating lifespan respite and family caregiver support. The letters are available here: House and Senate.

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AAHD Efforts To Ensure Adequate Federal Resources

AAHD has joined over 80 organizations in advocating preparation of an annual federal childrens’ budget. The letter is available for download: PDF. On March 29, the CDC Coalition submitted testimony to the Congressional Appropriations Committees. AAHD is one of 140 national organization coalition members. The letter is available for download: PDF. On March 28, Roberta […]

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