Health Education: Consumers

Assessing Health Information for Individuals With Disabilities

 

Research Triangle Institute (RTI)           

 

Format             Evaluation

In 2006, RTI worked with CDC’s Disability and Health Program to conduct an evaluation in New Mexico, New York, and North Carolina of state-level strategies and publications for meeting the health information needs of people with disabilities. The evaluation assessed the impact of messages and materials related to various health topics on awareness, knowledge, cultural norms, and expectations among individuals with disabilities and professionals serving this population. RTI conducted a comprehensive literature review focusing on the development and dissemination of health communication materials for people with disabilities and then conducted stakeholder interviews, as well as focus groups with people with disabilities to explore their perspectives on the health promotion materials and identify best practices for future health promotion efforts.

 

Contact URL    http://www.rti.org/page.cfm?objectid=E557191B-B85E-4340-B3BCDECACBB7D186&thread=all

 

Contact Agency      

Research Triangle Institute

P.O. Box 12194
Research Triangle Park, NC 27709-2194

(919) 485-2666          

 

“E-Patients With a Disability or Chronic Disease–Just Half Of Adults With Chronic Conditions Use The Internet; But Once Online, They Are Avid Consumers Of Health Information” by Susannah Fox, Associate Director of Pew Internet & American Life Project, Monday, October 8, 2007

 

Pew Internet & American Life Project               

 

Format             On-line report                       

 

According to this report, about a fifth of American adults report that a disability or chronic disease keeps them from participating fully in work, school, housework, or other activities. Half of those living with a disability or chronic disease go online, compared to 74% of those who report no chronic conditions. Fully 86% of internet users living with disability or chronic illness have looked online for information about at least one of 17 health topics, compared with 79% of internet users with no chronic conditions.  People with chronic conditions are more likely than other e-patients to report that their online searches affected treatment decisions, their interactions with their doctors, their ability to cope with their condition, and their dieting and fitness regimen.

In addition to providing national telephone survey data, this report includes quotes from online essays written by members of an online support group, the Association of Cancer Online Resources (ACOR.org).

 

Contact URL  http://www.pewinternet.org/PPF/r/222/report_display.asp

Contact Agency      

Pew Internet & American Life Project

1615 L St., N.W., Suite 700

Washington, D.C. 20036

 

“Sex Education for Physically, Emotionally, and Mentally Challenged Youth”       

Advocates for Youth

 

Format             Online fact sheet                  

This summary discusses sex education for youth who live with physical and/or mental disabilities and includes statistics on disability among American youth, an overview of common myths and facts about the sexuality of people living with disabilities, general guidelines for parents of youth with disabilities as well as professional sex educators, and an annotated bibliography of sex education materials and resources.

Contact URL    http://www.advocatesforyouth.org/PUBLICATIONS/frtp/challengedyouth.pdf

 

Contact Agency      

Advocates for Youth

2000 M Street, NW, Suite 750

Washington, DC 20036

(202) 419-3420

 

 

Women with Disabilities (WWD) Education Program               

 

Sponsored by the Association of Professors of Gynecology and Obstetrics, Cardinal Health, Christopher Reeve Foundation, FISA Foundation, Harvard Medical School, Milbank Foundation for Rehabilitation, Susan G. Komen for the Cure, and University of Pittsburgh

 

Format             Program

 

In 2004, the U.S. Department of Health and Human Services sponsored a summit meeting entitled “Breaking Down the Barriers to Health Care for Women with Disabilities,” during which participants discussed various healthcare challenges facing women with disabilities, especially the need for better access to services. The WWD Program was developed to meet the educational need for improving care to this diverse and underserved population. The concept for the project came from a special task force consisting of physicians and other healthcare professionals. The WWD Program provides two parallel tracts of a self-management curriculum for patients and a training curriculum for health professionals; downloadable materials are presented in a variety of interactive formats, such as PowerPoint slide sets including narrated versions, videos, and illustrated monographs.

 

Contact URL    http://www.womenwithdisabilities.org/about/prjhistory.html          

 

Contact Agency      

comments@womenwithdisabilities.org