Rare Conditions

Participation in society for people with a rare diagnosis

Gunilla Jaeger, M.Sci., AnnCatrin Röjvik, M.Sci., Britta Berglund, R.N., Ph.D. Disability and Health Journal, Vol. 8, Issue 1, p44–50 Published online: July 25 2014 http://dx.doi.org/10.1016/j.dhjo.2014.07.004     Abstract Background Many rare diagnoses are syndromes that have complex consequences with a significant impact on the individuals’ everyday life. Adults with rare diagnoses are a growing group […]

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