Developmental Disability

Caregivers’ effect on weight management in adults with intellectual and developmental disabilities

L.T. Ptomey, Ph.D., R.D., L.D., C.A. Gibson, Ph.D., J. Lee, Ph.D., D.K. Sullivan, Ph.D., R.D., R.A. Washburn, Ph.D , A.M. Gorczyca, Ph.D, J.E. Donnelly, Ep.D. Disability and Health Journal, Vol. 10, Issue 4, p542–547 DOI: http://dx.doi.org/10.1016/j.dhjo.2017.02.001   Introduction Caregivers of adults with IDD often play a large role in the ability of adults with IDD to lose weight. Objective The purpose of this study […]

Read More »»

Dietary and physical activity behaviors of adults with developmental disabilities and their direct support professional providers

Kendall A. Leser, Ph.D., Phyllis L. Pirie, Ph.D., Amy K. Ferketich, Ph.D., Susan M. Havercamp, Ph.D.,Mary Ellen Wewers, Ph.D., M.P.H. Disability and Health Journal, Vol. 10, Issue 4, p532–541 DOI: http://dx.doi.org/10.1016/j.dhjo.2017.01.006   Background People with developmental disabilities lead more sedentary lifestyles, consume poorer diets, as well as have higher rates of chronic conditions such as diabetes and heart disease when compared to […]

Read More »»

Birth outcomes among US women with intellectual and developmental disabilities

Ilhom Akobirshoev, PhD, MA, MSW, Susan L. Parish, PhD, MSW, Monika Mitra, PhD, Eliana Rosenthal Disability and Health Journal, Vol. 10, Issue 3, p406–412 DOI: http://dx.doi.org/10.1016/j.dhjo.2017.02.010   Background Women with intellectual and developmental disabilities (IDD) are bearing children at increasing rates. However, there is very little research about pregnancy experiences and birth outcomes among women with IDD. No studies to date have […]

Read More »»

Sexual health in the community: Services for people with intellectual and developmental disabilities

    Carli Friedman, PhD, Aleksa L. Owen, MSW PhD Candidate Disability and Health Journal, Vol. 10, Issue 3, p387–393 DOI: http://dx.doi.org/10.1016/j.dhjo.2017.02.008   Background Sexuality is a central dimension of overall health and well-being. People with intellectual and developmental disabilities (IDD) continue to experience disparities in healthcare, particularly regarding access to sexual health related services. Medicaid Home and Community-Based Services […]

Read More »»

You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities

Katherine E. McDonald, Ph.D, Erin Stack, M.S. Disability and Health Journal, Volume 9, Issue 2 Published online: January 03, 2016 DOI: http://dx.doi.org/10.1016/j.dhjo.2015.12.006 Background Community-based participatory research (CBPR) seeks to improve the responsiveness of science to community priorities and foster positive community change through equitable research collaborations between scientists and community members. CBPR resonates with disability rights […]

Read More »»

Development and psychometric properties of a scale assessing the needs of caregivers of children with disabilities

Seok Hong Tan, M.P.H, Postgraduate Unit, Department of Social and Preventive Medicine, Faculty of Medicine, University Malaya, 50603 Kuala Lumpur, Malaysia Disability and Health Journal, July 2015 Volume 8, Issue 3, Pages 414–423 DOI: http://dx.doi.org/10.1016/j.dhjo.2014.11.003 Background Planning and evaluation of health care services for children with disabilities requires information on their caregivers’ needs. Objective This paper aims to present […]

Read More »»

National health surveillance of adults with disabilities, adults with intellectual and developmental disabilities, and adults with no disabilities

Susan M. Havercamp, Ph.D., Haleigh M. Scott, M.A. The Ohio State University Nisonger Center, 1581 Dodd Dr, Columbus, OH 43210, USA DOI: http://dx.doi.org/10.1016/j.dhjo.2014.11.002 Background People with disabilities experience worse health and poorer access to health care compared to people without disability. Large-scale health surveillance efforts have largely excluded adults with intellectual and developmental disability. This […]

Read More »»

Feelings of loss in parents of children with infantile cerebral palsy

Manuel Fernández-Alcántara, M.Sc., M. Paz García-Caro, Ph.D., Carolina Laynez-Rubio, Ph.D., M. Nieves Pérez-Marfil, Ph.D., Celia Martí-García, Ph.D., Ángela Benítez-Feliponi, Ph.D., Marta Berrocal-Castellano, M.Sc., Francisco Cruz-Quintana, Ph.D. Disability and Health Journal, Vol. 8, Issue 1, p93–101 Published online: June 30 2014 http://dx.doi.org/10.1016/j.dhjo.2014.06.003 Abstract Background Raising a child diagnosed with infantile cerebral palsy is a challenge for […]

Read More »»

Development of an audio-computer assisted self-interview to investigate violence and health in the lives of adults with developmental disabilities

Mary Oschwald, Ph.D., Sandy Leotti, M.S.W., Dora Raymaker, M.S., Marsha Katz, M.S.Ed., Rebecca Goe, M.A., Mark Harviston, B.S., Annie Wallington, Lisa Howard, Leanne Beers, M.S., Christina Nicolaidis, M.D., Susan Robinson-Whelen, Ph.D., Rosemary B. Hughes, Ph.D., Emily Lund, M.A., Laurie E. Powers, Ph.D., the Partnering with People with Disabilities to Address Violence Consortium jThe Partnering with […]

Read More »»

Nutritional intervention improves menu adequacy in group homes for adults with intellectual or developmental disabilities

Kathleen Humphries, Ph.D., Alison Pepper, M.A., Meg Ann Traci, Ph.D., Julianna Olson, Tom Seekins  Disability and Health Journal, July 2009 Volume 2, Issue 3, Pages 136–144 DOI: http://dx.doi.org/10.1016/j.dhjo.2009.01.004 Abstract Background Research documents that adults with intellectual or developmental disabilities (IDD) living in the community experience nutritional deficits, inadequate diets, and poor nutritional status. Objective We developed a nutrition […]

Read More »»