Perception of secondary conditions in adults with spina bifida and impact on daily life

Robert Wagner, M.D., Ronna Linroth, O.T., Ph.D., Candice Gangl, O.T.D., O.T.R/L., Nancy Mitchell, M.A., O.T.R/L., Michelle Hall, C.P.O., .A.A.O.P.,Rhonda Cady, Ph.D., R.N.,Matthew Christenson, B.S. Disability and Health Journal, October 2015 Volume 8, Issue 4, Pages 492–498 DOI: http://dx.doi.org/10.1016/j.dhjo.2015.03.012 Background Spina bifida is a congenital defect of the neural tube resulting in motor and sensory disruption. Persons with spina bifida can also experience […]

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Hospitalization for urinary tract infections and the quality of preventive health care received by people with spina bifida

Brian S. Armour, Ph.D., Lijing Ouyang, Ph.D., Judy Thibadeau, R.N., M.N., Scott D. Grosse, Ph.D., Vincent A. Campbell, Ph.D., David Joseph, M.D. Disability and Health Journal,  July 2009 Volume 2, Issue 3, Pages 145–152 DOI: http://dx.doi.org/10.1016/j.dhjo.2009.02.001 Abstract Background The preventive health care needs of people with disabilities often go unmet, resulting in medical complications that may require […]

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Bowel and Bladder Research: Spinal Cord Injuries

Bladder management in persons with spinal cord lesion. Dahlberg A, Perttilä I, Wuokko E, Ala-Opas M.  Käpylä Rehabilitation Centre, Finnish Association of People with Mobility Disabilities, Nordenskiöldinkatu 18B, PO Box 103, 00251 Helsinki, Finland.  Spinal Cord. 2004 Dec;42(12):694-8. STUDY DESIGN: Cross-sectional clinical descriptive prevalence study. OBJECTIVE: To evaluate the methods of self-reported bladder management, the […]

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Bowel and Bladder Research: People with Spina Bifida

Long-term urologic outcome in patients with caudal regression syndrome, compared with meningomyelocele and spinal cord lipoma. Torre M, Buffa P, Jasonni V, Cama A.  Paediatric Surgery, Istituto Giannina Gaslini, 16148 Genoa, Italy. micheletorre@hotmail.com  J Pediatr Surg. 2008 Mar;43(3):530-3. BACKGROUND/PURPOSE: The long-term urologic outcome in a large series of patients with neural tube defects was evaluated. […]

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Bowel and Bladder Research: Bladder Management for People with Disabilities

Developing a strategy to reduce the high morbidity of patients with long-term urinary catheters: the BioMed catheter research clinic. Khan AA, Mathur S, Feneley R, Timoney AG.  BioMed Centre, Bristol Urological Institute, Southmead Hospital, Bristol, UK.  BJU Int. 2007 Dec;100(6):1298-301. OBJECTIVE: To assess the idea of managing patients having problems with long-term catheterization (LTC, normally […]

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Bowel and Bladder Research: Children with Spina Bifida

Achieving fecal continence in patients with spina bifida: a descriptive cohort study. Vande Velde S, Van Biervliet S, Van Renterghem K, Van Laecke E, Hoebeke P, Van Winckel M. Department of Pediatric Gastroenterology and Surgery, University Hospital Ghent, Ghent, Belgium. Saskia.vandevelde@ugent.be  J Urol. 2007 Dec;178(6):2640-4; discussion 2644. Epub 2007 Oct 22. PURPOSE: Fecal incontinence is […]

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High prevalence of incontinence among young adults with spina bifida: description, prediction and problem perception.

Verhoef M, Lurvink M, Barf HA, Post MW, van Asbeck FW, Gooskens RH, Prevo AJ. Rehabilitation Centre De Hoogstraat, 3583 TM Utrecht, The Netherlands.  Spinal Cord. 2005 Jun;43(6):331-40. STUDY DESIGN: Cross-sectional study. OBJECTIVES: To study the prevalence of incontinence, problem perception and determinants of urinary and faecal incontinence in young adults with spina bifida. SETTING: […]

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Bladder dysfunction in Duchenne muscular dystrophy.

Although bladder function is thought to be unaffected in Duchenne muscular dystrophy, 46/88 boys interviewed had urinary problems. Nine underwent video urodynamics, showing in eight a small capacity, hyperreflexic bladder, and in the ninth (post spinal surgery) hyperreflexia and detrusor sphincter dyssynergia. Urinary dysfunction is a treatable feature of DMD. […]

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