Young Adults

South Carolina Rare Conditions Project

The Centers for Disease Control and Prevention (CDC)-funded South Carolina Study of Adolescents and Young Adults with Rare Conditions grant will utilize administrative data that are managed by the Office for Research and Statistics (ORS) at the South Carolina Budget and Control Board and the SC Disability Cube, created by the Study Team with colleagues… Read More »»

Pilot for State-Specific Cross-Sectional Surveillance of Persons with Rare Disorders and Longitudinal Assessment of Outcomes

U.S. Department of Health and Human Services’ Centers for Disease Control and Prevention, as appears on grants.gov website   Format           Funding Opportunity Announcement RFA-DD-11-004   This funding opportunity announcement solicits cooperative agreement applications to investigate factors that influence well-being for young adults with rare disorders in the three areas of health, education or work, and… Read More »»

Center on Postsecondary Education and Disability (CPED)

University of Connecticut   Format             University Center   CPED works to promote access to postsecondary education for students with disabilities, combining research-based evidence and professional training to inform the field and advance postsecondary education opportunities for students. Its mission is achieved through graduate coursework, an annual Postsecondary Disability Training Institute, research and model demonstration projects,… Read More »»

Center for Adults with Autism

The Towson University   Format             Center   The Center’s mission is to “empower young adults who have ASD to keep learning and to live life to their fullest” by striving to be an integrated, interdisciplinary resource center that supports education for professionals, and links academic and community resources for young adults with ASD and their… Read More »»

Social Participation in a Nationally Representative Sample of Older Youth and Young Adults With Autism.

OBJECTIVE: To describe social participation and identify factors that affect it in a nationally representative sample of adolescents and young adults with autism. METHODS: Longitudinal cohort study using data from the National Longitudinal Transition Study-2. The World Health Organization International Classification of Functioning, Disability, and Health model was used with participation as the dependent category.… Read More »»

Determinants of social participation–with friends and others who are not family members–for youths with cerebral palsy.

BACKGROUND: Social participation provides youths with opportunities to develop their self-concept, friendships, and meaning in life. Youths with cerebral palsy (CP) have been reported to participate more in home-based leisure activities and to have fewer social experiences with friends and others than youths without disabilities. OBJECTIVE: The objective of this study was to identify youth,… Read More »»

Youth with spina bifida and transitions: health and social participation in a nationally represented sample.

OBJECTIVE: To describe outcomes and identify factors that affect social participation in youth and young adults with spina bifida. STUDY DESIGN: Prospective data from a nationally representative survey of youth and young adults with disabilities were analyzed. The WHO ICF framework was used with participation as the dependent category and (a) body function/structure; (b) activities;… Read More »»

Substance use, mental illness and violence: the co-occurrence of problem behaviors among young adults.

A paucity of research exists in which the co-occurrence of substance use, mental illness, and violence in young adults is examined. Concurrently, there is also a lack of research explicating the contribution of theoretically based risk factors for these problematic outcomes in this population. This lack of both outcome and explanatory research equally affects the… Read More »»

Healthcare Transition Research: Access to Care

Access to care for youth with special health care needs in the transition to adulthood. Lotstein DS, Inkelas M, Hays RD, Halfon N, Brook R.  Department of Pediatrics, David Geffen School of Medicine, University of California-Los Angeles, Los Angeles, California 90024, USA. dlotstein@mednet.ucla.edu  J Adolesc Health. 2008 Jul;43(1):23-9. Epub 2008 Apr 25.  Comment in: J… Read More »»

Healthcare Transition Research: Providers (Nurses, Professionals)

Dimensions of the transition service coordinator role. Betz CL, Redcay G.  University of Southern California Center for Excellence in Developmental Disabilities, Children’s Hospital, Los Angeles, USA.  J Spec Pediatr Nurs. 2005 Apr-Jun;10(2):49-59. ISSUES AND PURPOSE: This article describes the development and implementation of an innovative advanced practice role, as a transition service coordinator for nurses… Read More »»