Spina Bifida

The assessment of weight status in children and young people attending a spina bifida outpatient clinic: a retrospective medical record review

June 13, 2013

McPherson AC, Swift JA, Yung E, Lyons J, Church P.  Bloorview Research Institute, Dalla Lana School of Public Health , Toronto, ON , Canada . Disabil Rehabil. 2013 Mar 19. [Epub ahead of print]. Purpose: Children with disabilities are two to three times more likely to become overweight or obese than typically developing children. Children… Read More »»

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Health Promotion Resources: Spina Bifida

February 22, 2012

The Spina Bifida Association (SBA)’s Kids!Camp Contact URL http://www.sbaa.org/site/c.liKWL7PLLrF/b.2663777/k.4E96/Send_A_Kid_With_Spina_Bifida_To_Camp.htm   The Spina Bifida Association (SBA)’s TEAM (Teens and Mentors) Program Contact URL http://www.sbaa.org/site/c.liKWL7PLLrF/b.2644781/k.6512/TEAM_Teen s_And_Mentors.htm

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How does participation of youth with spina bifida vary by age?

November 1, 2010
BY: Kelly E, Altiok H, Gorzkowski J, Abrams J, Vogel L. Shriners Hospitals for Children®, 2211 North Oak Park Avenue, Chicago, IL, 60707-3392, USA, ekelly@shrinenet.org.
Clinical Orthopaedics And Related Research®. Symposium: Myelomeningocele
2010 Nov

BACKGROUND:  Youth with disabilities are at risk for decreased participation in community activities. However, little is known about participation at different developmental periods of childhood and adolescence among youth with spina bifida (SB) or whether child, family, and SB-associated factors influence participation. QUESTIONS/PURPOSES:  Our cross-sectional study examined participation among youth with SB and assessed how… Read More »»

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Youth with spina bifida and transitions: health and social participation in a nationally represented sample.

October 1, 2010
BY: Liptak GS, Kennedy JA, Dosa NP. SUNY Upstate Medical Center, Department of Pediatrics, Golisano Children's Hospital, Syracuse, NY 13210, USA. LiptakG@upstate.edu J Pediatr. 2010 Oct;157(4):584-8, 588.e1. Epub 2010 May 20. Comment in: J Pediatr. 2010 Oct;157(4):524-6.

OBJECTIVE: To describe outcomes and identify factors that affect social participation in youth and young adults with spina bifida. STUDY DESIGN: Prospective data from a nationally representative survey of youth and young adults with disabilities were analyzed. The WHO ICF framework was used with participation as the dependent category and (a) body function/structure; (b) activities;… Read More »»

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“The Consequences of Obesity in Children with Spina Bifida”

February 20, 2010

OandPBusinessNews (orthotics and prosthetics)   Format             Online news article   This article is geared toward families of children with spina bifida and the practitioners who work with these children.  It states that at least 50% of children with spina bifida have a likelihood of being overweight beyond age 6, and from adolescence through adulthood more… Read More »»

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Mobility, assistive technology use, and social integration among adults with spina bifida.

July 1, 2009
BY: Dicianno BE, Gaines A, Collins DM, Lee S. Human Engineering Research Laboratories, University of Pittsburgh, Pittsburgh, Pennsylvania, USA. Am J Phys Med Rehabil. 2009 Jul;88(7):533-41.

OBJECTIVE: Many individuals with spina bifida have impairments that limit mobility and functional independence. Sedentary lifestyles and social isolation are very prevalent. This study evaluated the association between the use of mobility devices and degree of socialization. DESIGN: A retrospective chart review was performed on 208 adults with spina bifida attending a university-based clinic. Data… Read More »»

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Spina Bifida: Obesity Resource

February 20, 2009

Spina Bifida Association   Format             Webpage This webpage discusses how obesity develops, special concerns for people with spina bifida, how to make preventing obesity a family affair, strategies for success, and weight reduction. Contact URL    http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2700287/k.C25F/Obesity.htm   Contact Agency Spina Bifida Association 4590 MacArthur Boulevard, NW Washington, DC 20007 (202) 944-3285, Toll Free: 800-621-3141

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Healthcare Transition Research: Access to Care

July 1, 2008

Access to care for youth with special health care needs in the transition to adulthood. Lotstein DS, Inkelas M, Hays RD, Halfon N, Brook R.  Department of Pediatrics, David Geffen School of Medicine, University of California-Los Angeles, Los Angeles, California 90024, USA. dlotstein@mednet.ucla.edu  J Adolesc Health. 2008 Jul;43(1):23-9. Epub 2008 Apr 25.  Comment in: J… Read More »»

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Bowel and Bladder Research: People with Spina Bifida

February 27, 2008

Long-term urologic outcome in patients with caudal regression syndrome, compared with meningomyelocele and spinal cord lipoma. Torre M, Buffa P, Jasonni V, Cama A.  Paediatric Surgery, Istituto Giannina Gaslini, 16148 Genoa, Italy. micheletorre@hotmail.com  J Pediatr Surg. 2008 Mar;43(3):530-3. BACKGROUND/PURPOSE: The long-term urologic outcome in a large series of patients with neural tube defects was evaluated.… Read More »»

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Bowel and Bladder Research: Children with Spina Bifida

February 27, 2008

Achieving fecal continence in patients with spina bifida: a descriptive cohort study. Vande Velde S, Van Biervliet S, Van Renterghem K, Van Laecke E, Hoebeke P, Van Winckel M. Department of Pediatric Gastroenterology and Surgery, University Hospital Ghent, Ghent, Belgium. Saskia.vandevelde@ugent.be  J Urol. 2007 Dec;178(6):2640-4; discussion 2644. Epub 2007 Oct 22. PURPOSE: Fecal incontinence is… Read More »»

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