Access to care for youth with special health care needs in the transition to adulthood. Lotstein DS, Inkelas M, Hays RD, Halfon N, Brook R. Department of Pediatrics, David Geffen School of Medicine, University of California-Los Angeles, Los Angeles, California 90024, USA. dlotstein@mednet.ucla.edu J Adolesc Health. 2008 Jul;43(1):23-9. Epub 2008 Apr 25. Comment in: J… Read More »»
Healthcare Transition
Healthcare Transition Research: Providers (Nurses, Professionals)
Dimensions of the transition service coordinator role. Betz CL, Redcay G. University of Southern California Center for Excellence in Developmental Disabilities, Children’s Hospital, Los Angeles, USA. J Spec Pediatr Nurs. 2005 Apr-Jun;10(2):49-59. ISSUES AND PURPOSE: This article describes the development and implementation of an innovative advanced practice role, as a transition service coordinator for nurses… Read More »»
Health Care Transitions: Web, Video and Print Resources
Health Care Transitions: Web, Video and Print Resources The Institute for Child Health Policy at the University of Florida Format Webpage This webpage provides information on a variety of web, video, and print resources in the area of health care transitions of teens with special health care needs. Included are written transition guides, health… Read More »»
Health Care Checklist
The Illinois Division of Specialized Care for Children, The University of Illinois at Chicago, adapted from the health care checklist developed by the State of Washington’s Adolescent Health Transition Project, California’s Healthy and Ready to Work (HRTW) Transition Health Care Assessment, and Massachusetts’ Health Care Skills Checklist. Format Checklist The Health Care Checklist… Read More »»
Healthcare Transition Resources: Providers
“Communicate, Collaborate, Celebrate: Creating Partnerships Between Physicians and Parents of Children with Disabilities” by Dr. Judy Berry, 2006 Center for Learning and Leadership, College of Medicine, University of Oklahoma Health Sciences, Oklahoma City Format Publication Dr. Judy Berry, a partner of the Center for Learning and Leadership, Oklahoma’s University Center for Excellence… Read More »»
Healthcare Transition Resources: Families
“A Guide to Transition Services for Youth with Special Health Care Needs” developed by Timothy Hershey Colorado Department of Public Health and Environment Prevention Services Division – CYSHCN Unit Health Care Program for Children with Special Needs (HCP) Format Guide Geared toward parents of youth with special health care needs, this guide… Read More »»
Transitions: A Guide to Getting Older and Changing Health Care Providers
Commission for Children with Special Health Care Needs Format Fact sheet Geared toward adolescents with special health care needs, this fact sheet describes moving toward adulthood as a positive transition, and lists steps to take toward adult health care. It also discusses things to consider when deciding when to transfer care, who can help… Read More »»
Taking Charge Of Your Health Care: A Handout For Adolescents And Young Adults With Special Health Care Needs And Disabilities
Produced by the Institute for Community Inclusion at Children’s Hospital, Boston, as part of the Massachusetts Initiative for Youth with Disabilities, a project of the Massachusetts Department of Public Health. Supported in part by a project from the Maternal and Child Health Bureau (V, Social Security Act), Health Resources and Services Administration, Department of Health… Read More »»
Healthcare Transition Research: Families
Addressing transition to adult health care for adolescents with special health care needs. Scal P, Ireland M. Division of General Pediatrics and Adolescent Health, University of Minnesota Medical School, Minneapolis, Minnesota 55455, USA. scal0005@umn.edu Pediatrics. 2005 Jun;115(6):1607-12. OBJECTIVE: To determine the factors associated with addressing the transition from pediatric to adult-oriented health care among US… Read More »»
Providing a primary care medical home for children and youth with cerebral palsy.
Children and youth with cerebral palsy present pediatricians with complex diagnostic and therapeutic challenges. In most instances, care also requires communication and comanagement with pediatric subspecialists and pediatric surgical specialists, therapists, and community developmental and educational teams. The importance of family resilience to the patient’s well-being broadens the ecologic scope of care, which highlights the… Read More »»

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