Cerebral Palsy

Gastrostomy feeding in cerebral palsy: too much of a good thing?

November 1, 2006
BY: Sullivan PB, Alder N, Bachlet AM, Grant H, Juszczak E, Henry J, Vernon-Roberts A, Warner J, Wells J. Department of Paediatrics, University of Oxford, Oxford, UK. peter.sullivan@paediatrics.ox.ac.uk Dev Med Child Neurol. 2006 Nov;48(11):877-82. Comment in: Dev Med Child Neurol. 2006 Nov;48(11):869.

Gastrostomy tube (GT) feeding in children with cerebral palsy (CP) is associated with significant increases in weight gain and, potentially, with overfeeding. This study aimed to measure energy balance and body composition in children with CP who were fed either orally or by GT. Forty children (27 males, 13 females; median age 8y 6mo; range… Read More »»

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Eating and feeding are not the same: caregivers’ perceptions of gastrostomy feeding for children with cerebral palsy.

September 1, 2006
BY: Petersen MC, Kedia S, Davis P, Newman L, Temple C. Le Bonheur Children's Medical Center and Boling Center for Developmental Disabilities, Memphis, Tennessee, USA. mcp@uoregon.edu Dev Med Child Neurol. 2006 Sep;48(9):713-7.

Using a semi-structured questionnaire, this descriptive study examined perceptions of feeding and adherence to feeding recommendations for caregivers (26 females; mean age 32y 7mo [SD 9.4y], range 20-59y) of children with cerebral palsy (CP) and a gastrostomy tube (GT). Children in the study (15 females, 11 males; mean age 4y 8mo [SD 3y 11mo], range… Read More »»

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How might districts identify local barriers to participation for children with cerebral palsy?

December 9, 2005
BY: Welsh B, Jarvis S, Hammal D, Colver A; North of England Collaborative Cerebral Palsy Survey. School of Clinical Medical Sciences, Sir James Spence Institute of Child Health, Paediatric and Lifecourse Epidemiology Research Group, University of Newcastle upon Tyne, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne NE1 4LP, UK. Public Health. 2006 Feb;120(2):167-75. Epub 2005 Dec 9.

OBJECTIVES: To explore how data about participation and the local environment might be used to identify barriers to participation for children with cerebral palsy. METHODS: Participation is measured at 5 years of age using the six domains of the lifestyle assessment questionnaire. Individual child score profiles are compared with expected patterns from similar children and… Read More »»

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The health and well-being of caregivers of children with cerebral palsy.

June 27, 2005
BY: Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, Swinton M, Zhu B, Wood E. Department of Clinical Epidemiology and Biostatistics, McMaster Evidence-Based Practice Centre, Hamilton, ON, Canada. praina@mcmaster.ca Pediatrics. 2005 Jun;115(6):e626-36.

OBJECTIVE: Most children enjoy healthy childhoods with little need for specialized health care services. However, some children experience difficulties in early childhood and require access to and utilization of considerable health care resources over time. Although impaired motor function is the hallmark of the cerebral palsy (CP) syndromes, many children with this development disorder also… Read More »»

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Aging with cerebral palsy.

February 1, 2005
BY: Zaffuto-Sforza CD. Department of Rehabilitation Medicine, Mount Sinai School of Medicine, One Gustave L. Levy Place, New York, NY 10029, USA. Phys Med Rehabil Clin N Am. 2005 Feb;16(1):235-49.

Before the mid-twentieth century, few people with CP survived to adulthood. Now, 65% to 90% of children with CP survive. Because of improvements in intensive care techniques leading to the increased survival of very low-birth-weight infants and the increased longevity of the general population, there are a large number of disabled adults requiring medical care.… Read More »»

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Gastrostomy tube feeding in children with cerebral palsy: a prospective, longitudinal study.

February 1, 2005
BY: Sullivan PB, Juszczak E, Bachlet AM, Lambert B, Vernon-Roberts A, Grant HW, Eltumi M, McLean L, Alder N, Thomas AG. University of Oxford, Department of Paediatrics, Oxford, UK. peter.sullivan@paediatrics.ox.ac.uk Dev Med Child Neurol. 2005 Feb;47(2):77-85. Comment in: Dev Med Child Neurol. 2005 Feb;47(2):76.

We report a longitudinal, prospective, multicentre cohort study designed to measure the outcomes of gastrostomy tube feeding in children with cerebral palsy (CP). Fifty-seven children with CP (28 females, 29 males; median age 4y 4mo, range 5mo to 17y 3mo) were assessed before gastrostomy placement, and at 6 and 12 months afterwards. Three-quarters of the… Read More »»

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A multiprofessional children’s feeding clinic.

January 1, 2005
BY: Seabert H, Eastwood EC, Harris A. Taunton and Somerset Hospital, Taunton. J Fam Health Care. 2005;15(3):72-4.

A paediatric dietitian, occupational therapist and speech and language therapist describe how they jointly run a feeding clinic for infants and children with feeding difficulties. Conditions treated include cerebral palsy, autism, learned aversion following severe gastro-oesophageal reflux, and delayed oral development that affects feeding. The therapists’ co-ordinated approach enables parents to receive clear guidance on… Read More »»

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Providing a primary care medical home for children and youth with cerebral palsy.

October 1, 2004
BY: Cooley WC; American Academy of Pediatrics Committee on Children With Disabilities. Pediatrics. 2004 Oct;114(4):1106-13.

Children and youth with cerebral palsy present pediatricians with complex diagnostic and therapeutic challenges. In most instances, care also requires communication and comanagement with pediatric subspecialists and pediatric surgical specialists, therapists, and community developmental and educational teams. The importance of family resilience to the patient’s well-being broadens the ecologic scope of care, which highlights the… Read More »»

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Feeding method and health outcomes of children with cerebral palsy.

August 1, 2004
BY: Rogers B. Department of Pediatrics, Division of Developmental Pediatrics, Oregon Health and Science University, Portland, Oregon, USA. rogersbr@ohsu.edu J Pediatr. 2004 Aug;145(2 Suppl):S28-32.

Disorders of feeding and swallowing are common in children with cerebral palsy. Feeding and swallowing disorders have significant implications for development, growth and nutrition, respiratory health, gastrointestinal function, parent-child interaction, and overall family life. Assessments need to be comprehensive in scope and centered around the medical home. Oral feeding interventions for children with cerebral palsy… Read More »»

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Gastrostomy feeding in cerebral palsy: a systematic review.

June 1, 2004
BY: Sleigh G, Brocklehurst P. National Perinatal Epidemiology Unit, Institute of Health Sciences, Old Road, Headington, Oxford OX3 7LF, UK. gilliannicholls@ntlworld.com Arch Dis Child. 2004 Jun;89(6):534-9.

AIMS: To determine benefits and risks for gastrostomy or jejunostomy feeding compared with oral feeding for children with cerebral palsy. METHODS: Systematic review. Search strategy: electronic databases–Cochrane Library, Medline, Embase, Cinahl, Lilacs, databases of theses, grey literature. INCLUDED: relevant systematic reviews, randomised controlled trials, observational studies, case reports. EXCLUDED: non-systematic reviews and qualitative research. PARTICIPANTS:… Read More »»

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