Cerebral Palsy

Health Promotion Resources: Cerebral Palsy

American Physical Therapy Association’s “Fitness Programs for Children with Cerebral Palsy”, presented by Diane Damiano, Maria Fragala-Pinkham, Cindy Miles, Wayne Stuberg, and Deborah Thorpe, August, 2006 Contact URL http://www.pediatricapta.org/members/fitnesscourse.cfm

Determinants of social participation–with friends and others who are not family members–for youths with cerebral palsy.

BACKGROUND: Social participation provides youths with opportunities to develop their self-concept, friendships, and meaning in life. Youths with cerebral palsy (CP) have been reported to participate more in home-based leisure activities and to have fewer social experiences with friends and others than youths without disabilities. OBJECTIVE: The objective of this study was to identify youth,… Read More »»

Social and community participation of children and youth with cerebral palsy is associated with age and gross motor function classification.

BACKGROUND: Through social and community participation, children and youth with cerebral palsy (CP) form friendships, gain knowledge, learn skills, express creativity, and determine meaning and purpose in life. OBJECTIVE: The purposes of this study were: (1) to determine whether social and community participation of children and youth with CP differ based on age, sex, and… Read More »»

A pilot study of quality of life in children with cerebral palsy after intensive body weight-supported treadmill training.

PURPOSE: This pilot study was designed to examine the effects of a 2-week program of intensive body weight-supported treadmill training (BWSTT) on clinical measures of perceived health-related quality of life and fatigue in children with cerebral palsy. METHODS: Six children with spastic cerebral palsy (aged 6-14 years; all classified as Gross Motor Function Classification System… Read More »»

Influence of adapted sport on quality of life: perceptions of athletes with cerebral palsy.

PURPOSE: This study sought to examine the effect of adaptive sports participation on athletic identity and influence on quality of life (QOL) for individuals with cerebral palsy (CP) participating in the CP World Games. METHOD: Surveys were conducted with 73 international athletes competing in the 2005 CP World Championships. The survey included descriptive questions about… Read More »»

Healthcare Transition Research: Access to Care

Access to care for youth with special health care needs in the transition to adulthood. Lotstein DS, Inkelas M, Hays RD, Halfon N, Brook R.  Department of Pediatrics, David Geffen School of Medicine, University of California-Los Angeles, Los Angeles, California 90024, USA. dlotstein@mednet.ucla.edu  J Adolesc Health. 2008 Jul;43(1):23-9. Epub 2008 Apr 25.  Comment in: J… Read More »»

“I have chosen to live life abundantly”: perceptions of leisure by adults who use augmentative and alternative communication.

An online focus group was used to investigate perceptions of eight adults with cerebral palsy who used AAC systems about their recreation activities and leisure experiences. Six themes emerged from discussions on benefits of leisure and community recreation: improved physical health, enjoyment, improved mental health, increased independence, enhanced social connections, and education of society. Nine… Read More »»

Growth and nutrition disorders in children with cerebral palsy.

Growth and nutrition disorders are common secondary health conditions in children with cerebral palsy (CP). Poor growth and malnutrition in CP merit study because of their impact on health, including psychological and physiological function, healthcare utilization, societal participation, motor function, and survival. Understanding the etiology of poor growth has led to a variety of interventions… Read More »»

Growth and nutritional status in residential center versus home-living children and adolescents with quadriplegic cerebral palsy.

OBJECTIVE: To describe growth and nutrition in nonambulatory youth (<19 years of age) with cerebral palsy (CP) living in residential centers compared with similar youth living at home. STUDY DESIGN: A multicenter, cross-sectional, single observational assessment of 75 subjects living in a residential care facility compared with 205 subjects living at home. Primary outcome measures… Read More »»

Activity, activity, activity: rethinking our physical therapy approach to cerebral palsy.

This perspective outlines the theoretical basis for the presentation with the same name as the second part of this title, which was given at the III STEP conference in July 2005. It elaborates on the take-home message from that talk, which was to promote activity in children and adults with cerebral palsy and other central… Read More »»