The Kennedy Krieger Research Institute, with funding provided by the National Center on Birth Defects and Developmental Disabilities (NCBDDD) through the Association of University Centers on Disabilities
Format Grant project
During the project period of 2005-2008 (still ongoing), clinicians at The Kennedy Krieger Research Institute will test an 8-week behavioral intervention to improve bowel and bladder continence. Children and youth with spina bifida, 5 through 18 years of age, will be recruited through the KKI Spina Bifida Center, Johns Hopkins Pediatric Urology Clinic and from the Chesapeake-Potomac Spina Bifida Association. Each study participant will receive an individual assessment and will develop an antecedent behavior management plan which includes: a written daily schedule for medication and catheterization, a pager prompt, behavioral incentives with positive reinforcement, training for coping skills, and behavioral support therapy in clinic and by phone. Based on the study findings, a tool will be developed to assess barriers to medical adherence.
Kennedy Krieger Institute
707 North Broadway
Baltimore, MD 21205